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My Battle with Merkel Cell Cancer

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68<br />

The infusion is about 3 hours. I sleep part of the time. Judy goes home and comes back<br />

at lunchtime <strong>with</strong> a sandwich from Subway, a soda and lemon yogurt.<br />

Judy leaves to pick up my anti-nausea pills.<br />

Zofram (generic name is Ondansetron) 8 mg twice a day.<br />

Compazine (generic name is Prochlorperazine) 10 mg as needed 6 hours apart.<br />

The insurance may not cover the Zofran, about $21 for 12 pills. No biggy.<br />

At about 2:45, The second gun arrives. 100 mg of VP16 in 250 mg of normal saline.<br />

I lost count of the number of visits to the bathroom, but my best estimate is 7. Fortunately,<br />

I found a more private bathroom.<br />

I must say that the first day went surprising well. I was not sick. I had no nausea. I was<br />

comfortable and I got to meet new people.<br />

To my left was a young man, about 35, <strong>with</strong> a lovely young woman, perhaps his wife or<br />

sister. He was also receiving cis platinum.<br />

He has a rare testicular cancer, choriocarcinoma and they have given up on trying to cure<br />

him. The treatments for him are designed for slowing the spread of already widespread<br />

disease.<br />

To my right was a man who was quietly playing cribbage <strong>with</strong> a woman, I presume his<br />

wife. Suddenly, he developed terrible chills and was in agony for about 20 minutes,<br />

perhaps because of an infected port. After the chills resolved, he was vomiting.<br />

We left at about 4:15 PM.<br />

I return Thursday and Friday for shorter sessions, just the VP16.<br />

On Saturday, I have to go for an injection to stimulate my bone marrow. I think it is<br />

Neulasta.<br />

I will post again about this.<br />

After we returned home, it was a quiet evening. I have had no symptoms. I ate a good<br />

dinner, drank some fluids and we watched the Giants (they lost) and American Idol<br />

(James Durbin would get my vote if I voted).<br />

I have now accumulated enough master points on line to become a Gold Life Master of<br />

the American Contract Bridge League.<br />

So what did I learn today?<br />

1. Chemo may not be as bad as I expected.<br />

2. There are other patients who are much worse off than me.<br />

3. I can find the bathrooms blindfolded while dragging my IV pole.<br />

Posted by David Shuster at 11:24PM (-07:00)<br />

Chemotherapy-Day 2<br />

Thursday, April 28, 2011<br />

Chemotherapy-Day 2<br />

All went according to plan. I arrived at 8:15 AM and the infusion room was empty.<br />

First was Solucortef and anti-nausea medication. Then 1000 cc of normal saline, followed<br />

by the VC16. I was out by 12:15. The needle was left overnight in the port but I had them<br />

pull it today so I can take a real shower tonight. The skin over the port seems to be<br />

healing well. The steri-strips stay until they start to fall off. During my treatments, several<br />

patients arrived for treatment needing new IV's. Watching the interaction between patient<br />

and nurse reinforced the conclusion that I had made a wise choice to have the port<br />

placed.<br />

I am having very few symptoms. <strong>My</strong> voice is slightly hoarse and I am having some<br />

constipation. I managed to pass some rocks which seemed to help. I'll start Metamucil<br />

tomorrow morning.<br />

I am getting the occasional hiccups. I was given a prescription for Reglan which I will try if<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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