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My Battle with Merkel Cell Cancer

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20<br />

might as well enjoy a good steak.
 Sarah has become something of a comedienne. She<br />

said that she will not participate in her day camp activities but was only going to stand<br />

around. She repeated that several times, and then <strong>with</strong> a big grin on her face she said "I<br />

was just kidding". She is learning to swim and Bel is also learning to swim. However<br />

allowing them to go in the pool is a big production. They have a wonderful time just using<br />

the wading pool. Just as were about to go inside, Rocky (our Goldendoodle) punctuates<br />

the evening by peeing in the pool. 
I sleep much better, having been reassured that the<br />

treatment plan is on track. 
I go for my Thursday morning radiation treatment. It is very<br />

quick and easy. I keep thinking as the radiation beam is traversing my body "take that<br />

you <strong>Merkel</strong> cells, I'm going to kill you. I'm going to get rid of every last one of you. You are<br />

my enemy and I hate you" .

On Friday, July 2, I received notice that my drivers license is<br />

up for renewal. It will expire on my birthday, August 18, 2010. I'll have to take a written<br />

test. I checked <strong>with</strong> the DMV website, and the earliest possible appointment is August 12.<br />

This means that I would have to take the test after five weeks of radiation treatment and<br />

my drivers license photo will show my face probably bright red from the radiation. One of<br />

the three DMV offices in Fresno has been closed for about a month. I decide to see if I<br />

can take the test <strong>with</strong>out an appointment. I drive to the DMV office in Clovis and get there<br />

about 830 in the morning. There were 75 to 100 people waiting in line outside the door.<br />

The parking lot was filled <strong>with</strong> cars and people searching for spots. Parking on the<br />

adjoining streets was also nonexistent, filled <strong>with</strong> additional vehicles along to people<br />

going to the DMV office. As I did not want to spend all day at the DMV, I decided to use<br />

my appointment. I asked Dr. John if I would be in mental condition to take the test and he<br />

said I would. If you have an appointment, you usually only have to wait a few minutes. I<br />

would hate to lose my drivers license. 
I asked Dr. John when I could travel. He suggests<br />

waiting three weeks after radiation treatment. I will make an appointment to go back to<br />

Seattle to see Dr. Nghiem at the end of September. Judy wants to plan a cruise.

This<br />

<strong>Merkel</strong> tumor has forced us to cancel a trip to Philadelphia to visit our son and daughterin-law<br />

and their new baby who is expected to be born in about a week. He will be our first<br />

grandson. I would like to travel to Philadelphia perhaps in the beginning of October to<br />

meet and greet him. They plan to name him Eli. 
Our oldest granddaughter, Eva, has<br />

written the following while at camp. I think she will be a wonderful writer someday.

<br />

"Friendship is the sprout of a new life.
 When you make a friend, you have a person who<br />

will be by your side, and love you no matter what.
 Your friend will always walk home <strong>with</strong><br />

you.
 They will hug you when you cry.
 Without friends, there would be no peace. The<br />

world would not spin round.
We need friends.<br />


Eva Shuster-Arechiga Age 9<br />

Posted by docshu at 02:01PM (-07:00)<br />

First Week of Radiation Treatment, Eli is born.<br />

Sunday, July 25, 2010<br />

Friday, July 9, 2010.<br />

<strong>My</strong> third radiation treatment was this morning. Yesterday in the afternoon, I felt some<br />

nausea. Otherwise I feel good and have no signs of radiation in my neck. I arrived at the<br />

office on time but had to wait about a half hour before treatment began. I met two<br />

interesting men in the waiting room. One was being treated for a brain tumor <strong>with</strong><br />

radiation and chemotherapy at the same time. He was optimistic because half way into<br />

his treatment the tumor was slightly smaller. He had a history of thirty years of survival<br />

after testicular cancer and lung metastases. The second man was being treated in his left<br />

neck for skin cancer, I presume squamous cancer and had a very red neck <strong>with</strong> a white<br />

patch about three inches in diameter, which was a skin graft. He also had some neck<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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