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My Battle with Merkel Cell Cancer

My Battle with Merkel Cell Cancer

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Dad is alive, alert, and describes himself as restless. They won't X-ray him until they<br />

stabilize his heart. spO2 is ranging 88% to 92%. Pulse 120. Blood pressure scares me at<br />

90/38.<br />

He expects to be admitted overnight.<br />

Sent from my iPhone **<br />

<strong>My</strong> ex-wife wrote back "Thank G-d!" when learning my dad was alive and alert. Divorces<br />

are tough on families and there is a temptation to demonize the ex. <strong>My</strong> dad never gave in<br />

to that temptation, and was probably the most even-tempered of the lot of us during that<br />

time. I've previously posted about the benefits of a happy blended family, and this was<br />

one of them: <strong>My</strong> ex-wife stood by the ready to help, and when my dad died, she was able<br />

not just to comfort our daughter, but to comfort her from a place of empathy.<br />

Turns out I read the blood pressure wrong. There will be errors, and when reporting to<br />

remote family members correcting the errors quickly is pretty important:<br />

** Email: Date: Wed, 18 Apr 2012 11:50:49 -0700<br />

Subject: Re: Update 11:43<br />

Correction. I misread blood pressure. 113/47<br />

Sent from my iPhone **<br />

In retrospect, I'm not sure that I misread the blood pressure, since it kept swinging pretty<br />

widely, but in the moment I wanted it to be 113/47 more than 90/38, so when I saw that<br />

reading, I was pretty willing to assume an error rather than volatility.<br />

I told the nurse that we wanted dad to speak <strong>with</strong> the doctor directly about his instructions<br />

regarding "do not resuscitate" ("DNR") and similar issues. The nurse said she would get<br />

the doctor.<br />

By noon, I was starting to feel a real risk that dad wouldn't make it out of the hospital. On<br />

the one hand, I was thinking they might send him to a regular room, but in my gut I was<br />

worried he wouldn't even make it to the ICU. I didn't want my out of town family to be<br />

caught by surprise (more than they already would be) by getting "he's at the hospital"<br />

emails followed by a "he passed away" email. So I sent an email offering a pretty frank<br />

assessment:<br />

** Email: Date: Wed, 18 Apr 2012 12:03:49 -0700<br />

Subject: Re: Update 1201<br />

O2 saturation took a nosedive before recovering.<br />

Dad is kind of out of it on and off.<br />

I'm not an MD so my intuition means little scientifically, but I have a very bad feeling in my<br />

gut about this one.<br />

Sent from my iPhone **<br />

The emails are, by now, getting harder and harder to send, but I'm getting to the point<br />

where I am getting teary-eyed and I fear having a phone conversation would be a very<br />

hard thing to do <strong>with</strong>out becoming incoherent. So emails it was.<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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