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My Battle with Merkel Cell Cancer

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is appealing my sentence to higher courts." It was an apt analogy then, and intervening<br />

events have unfortunately brought another level of accuracy to the analogy. A year ago<br />

(even a few months ago), dad could forget he was on death row for long stretches of<br />

time. He could play <strong>with</strong> his grandchildren, dine and go on cruises <strong>with</strong> his wife, play<br />

bridge, and work. By contrast, a death row inmate may forget from time to time that he is<br />

on death row, but he remains imprisoned, unable to enjoy even a moment of normal life.<br />

The physical impact of the cancer is now making it harder to enjoy normal life.<br />

<strong>My</strong> dad isn't a lawyer, so I doubt the distinction was intended, but when he wrote about<br />

death row, he said that he is "appealing my sentence to higher courts." Until now, we<br />

were hoping his conviction would be overturned, eliminating any accompanying<br />

sentence. I'd still love to see a full cure, but at this point we're through most or all of the<br />

appeal and a lengthy stay of the sentence pending appeal would be a welcome outcome<br />

on its own. The battle isn't over yet, but the most promising appeals of the conviction are<br />

behind us. I'm sure every death row inmate listens until the last second for the phone to<br />

ring <strong>with</strong> a pardon from the governor or a stay from the Supreme Court, and sometimes it<br />

does.<br />

Hope remains, but as it diminishes we cross into another problem and another legal<br />

analogy: The chilling effect. At some point, the death row inmate in my dad's example<br />

may stop studying for the GED, stop learning new skills, and toward the end may even<br />

refuse to start a book so lengthy he might not finish it before his scheduled execution<br />

date.<br />

While we wait, hoping for a stay from the Supreme Court of medical progress and<br />

treatment outcomes, dad battles daily <strong>with</strong> the question of how to spend the time he<br />

knows he has, regardless of treatment outcomes. Unlike the death row inmate, dad is<br />

home from the hospital, released from the confines of the death chamber's anteroom. He<br />

is free for now, but some of the trappings of his sentence remain -- a PEG feeding tube,<br />

weakness, and pain. All of the trappings can, for now, be managed (the pain <strong>with</strong> Vicodin,<br />

the weakness <strong>with</strong> physical therapy). The knowledge of his situation, however, is not<br />

quite so simple to manage.<br />

Thurgood Marshall wrote in a dissenting Supreme Court opinion "That this Court will<br />

ultimately vindicate [somebody] ... is of little consequence - for the value of a sword of<br />

Damocles is that it hangs - not that it drops."<br />

Our challenge is to find moments we can ignore the Sword of Damocles. The Sword of<br />

Damocles is a sword, suspended by a single hair, hanging above a ruler's throne, casting<br />

such a pall that the ruler soon begs to cede the throne (see footnote 1 below for a more<br />

detailed description).<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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