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My Battle with Merkel Cell Cancer

My Battle with Merkel Cell Cancer

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flatscreen TV dishes so that we could prepare food if needed. The cost was very<br />

reasonable at $79 per night <strong>with</strong>out any hotel tax being charged.<br />

Wednesday was a very busy day. First appointment was <strong>with</strong> Dr. Nghiem. I was first<br />

examined by a visiting physician from Japan. Then Dr. Nghiem came in. He gave me a<br />

complete examination. We had a long discussion about the options. He felt that there<br />

was no recurrence of tumor mass in the region of recent resection. Because of this, he<br />

felt that it would be inappropriate to start injections in the area where the tumor had been<br />

removed. We had a frank discussion about what my chances are <strong>with</strong> Judy present.<br />

Basically, radiation treatment is expected to control local disease at least 80% of cases.<br />

However there is a 50-50 chance of having distant disease. At that time, chemotherapy<br />

may be an option for palliation. Injection of beta interferon may be an option if a mass<br />

appears, but this treatment is too untested to inject this material at the original tumor<br />

section site.<br />

We then went for our appointment <strong>with</strong> Dr. Parvathaneni. We take a shuttle to the<br />

University Hospital which is about two or 3 miles away. We first met <strong>with</strong> a resident<br />

named dr Ralph Ermoian who is from Fresno. He examined me. We had long<br />

discussions about radiation treatment. Then Dr. P. arrived and he gave me a thorough<br />

examination including palpation of my tonsils causing me to gag. He felt that my tonsils<br />

were not involved. He is going to have discussions <strong>with</strong> Dr. John to organize my radiation<br />

treatments in Fresno. It looks like he will recommend only six weeks of radiation<br />

treatment.<br />

Following this, we returned to the lab at Dr. Nghiem's location where they draw nine<br />

tubes of blood. We then returned to SCCA house, picking up bagels on the way back to<br />

have a late lunch. I checked my e-mail and discover that they want me to return for one<br />

more blood sample. That takes less than an hour as I take the shuttle in both directions.<br />

We decided it would be best returned to Fresno immediately. The SCCA house is very<br />

good about this. They allow us to check out and credit us for the three days we did not<br />

spend there. Delta Air Lines, however, is not so cooperative. They want more money for<br />

the return flight to Fresno then they would charge if I just booked a one-way flight to<br />

Fresno. Instead, we book a direct flight from Seattle to Fresno on Alaska airlines. We<br />

arrived back in Fresno late Wednesday.<br />

I will work half a day on Thursday and half a day on Friday which will more than pay for<br />

the additional cost of the flight.<br />

It looks like the timetable is now as follows:<br />

Monday, June 28: I have an appointment for the setup for radiation treatment at 9 AM. I<br />

plan to work Monday afternoon.<br />

Tuesday, June 29: I plan to work all day.<br />

Wednesday, June 30: I have an appointment <strong>with</strong> Dr. Person for a complete teeth<br />

cleaning, and consultation regarding keeping my teeth healthy during radiation treatment.<br />

At 11 AM, I have an appointment for follow up <strong>with</strong> Dr. Flam.<br />

Thursday, July 1: I plan to work all day.<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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