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My Battle with Merkel Cell Cancer

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Friday, July 2: I plan to work in the morning.<br />

Tuesday, July 6: radiation treatment begins and probably will last six weeks.<br />

Posted by docshu at 11:23AM (-07:00)<br />

Radiation Planning<br />

Saturday, July 24, 2010<br />

Monday, June 28, 2010. 
Today was a set up appointment for my radiation therapy.<br />

Everything was done very efficiently. I was placed on a simulator table which is actually a<br />

CT scanner and some images obtained. They use a mask which goes over your head<br />

which is not unlike fencers mask. It is warmed up and softened and then placed over your<br />

head, pressed into position, and then cooled so that it retains its shape. This allows them<br />

to keep you in the proper position during radiation treatments.
Treatments will start on<br />

Thursday, July 8 and continue for six weeks, ending, ironically, on my birthday, August<br />

18, 2010. I will celebrate my 70th birthday by ending radiation treatment. We reviewed all<br />

the complications which are possible and the precautions to take. The most annoying<br />

probably will be the need to gargle and rinse my mouth about five times a day <strong>with</strong> a<br />

mixture of salt and baking soda and water.
Treatments will only take about 15 minutes<br />

and I should be in and out <strong>with</strong>in half an hour. Every Monday, there is what they call a<br />

stat session which will involve reviewing my progress <strong>with</strong> the radiation oncologist. On<br />

the first Monday after treatment begins, we will also meet <strong>with</strong> the dietitian. Dietary<br />

restrictions expected will be as follows. I'll not be allowed to have anything which is too<br />

acidic, nor foods which are crunchy and which might tear the mucosa of the mouth. I will<br />

not be allowed to have hot coffee or anything too cold. I'll have to restrict processed<br />

sugars because of the risk of dental caries. 
I'm still feeling cautiously optimistic, but I<br />

have to say that reading the case histories on the <strong>Merkel</strong> website is quite terrifying. Right<br />

now I am essentially asymptomatic, except for some discomfort at the surgical site.<br />

However I am aware that this is a potentially devastating malignancy which could rapidly<br />

appear in the liver, brain, bone amongst other sites. I hope that I am not spoiling my last<br />

good months by taking the radiation treatments. However I have no choice but to follow<br />

<strong>with</strong> my physicians recommendations as they are the top experts in the field. Some<br />

interesting literature has come to light linking the virus which is involved <strong>with</strong> <strong>Merkel</strong> cell<br />

carcinoma and the Salk vaccine which was used to immunize me against polio.<br />

Apparently many early batches of this vaccine were contaminated <strong>with</strong> the polyamovirus.<br />

Who could have known? I plan to spend some my time in the future writing a separate<br />

blog which will basically be my memoirs. In the meantime, I feel that I am coping very well<br />

<strong>with</strong> my current circumstances.<br />

Posted by docshu at 11:30AM (-07:00)<br />

Pre Radiation<br />

Saturday, July 24, 2010<br />

Wednesday, June 30, 2010.<br />

I have a dentist appointment at nine o'clock this morning. I'm nervous about this. If<br />

cavities are found, it is possible that I will need extractions prior to radiation treatment and<br />

in addition, it may change the treatment plan and delay the treatment. Fortunately,<br />

nothing is found. However I will have to return for additional x-rays of my mouth on July 7<br />

at 11 AM.<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong><br />

17

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