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My Battle with Merkel Cell Cancer

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PM.<br />

I will post again when I get home.<br />

Posted by David Shuster at 10:42AM (-08:00)<br />

Post Esophagoscopy Uppdate<br />

Friday, January 13, 2012<br />

It was done. I am somewhat improved but still have epigastric pain. Dr. Lewis will see me<br />

in 2 weeks. In the meantime, meat (except for ground meat) is off the table. I did burp<br />

tonight, for the first time in weeks.<br />

I have been able to down pudding and Boost Plus, which would have been impossible<br />

this morning.<br />

I will post a full description of the experience in a few days.<br />

Posted by David Shuster at 09:36PM (-08:00)<br />

Esophageal Dilatation: <strong>My</strong> Experience<br />

Monday, January 16, 2012<br />

On Friday, the 13th of January, my breakfast got stuck in my esophagus. Nothing would<br />

go down, and nothing would come back up. I had severe pain in my chest, and<br />

hypersecretions. <strong>My</strong> nose ran, my eyes watered, and my mouth filled <strong>with</strong> saliva. I was<br />

coughing and sneezing, and eventually, some food appeared in my mouth. After about 45<br />

minutes, the symptoms abated. I had scheduled my esophagoscopy for 3:00 PM, but Dr.<br />

Lewis was able to get me in for 1:00 PM. By that time, the symptoms were gone.<br />

I arrived at noon as requested. I was taken to a cubicle and changed into a gown. It was<br />

cold (or I was cold). They started an IV (2 tries). <strong>My</strong> veins were tiny because of the cold. I<br />

asked the nurse to use a heating pad on my hand to allow the veins to expand, but they<br />

had none available. I am left <strong>with</strong> hematomas at both sites, left hand and anticubital area.<br />

Dr. Lewis arrived shortly after 1:00 PM and they took me to the room. We talked and then<br />

the sedation was given <strong>with</strong> me lying on my left side. After that, I remember nothing.<br />

It was like Joan Rivers said about giving birth. "Put me out <strong>with</strong> the first pain and wake<br />

me up when the hairdresser comes".<br />

Dr. Lewis was surprised that he didn't find it as narrow as he expected. He didn't see<br />

signs of tumor infiltrating my esophagus. I have not yet had a chance to discuss the<br />

findings in detail. I will have an appointment <strong>with</strong> him in 2 weeks and may need the<br />

procedure repeated. I guess they don't want to stretch the area too much at a time for<br />

fear of perforation. I am to take 2 teaspoons of Lidocaine Viscous before meals, 20 mg of<br />

Prilosec twice daily, and to eat meat only if cut into tiny pieces.<br />

So, what is the result? That's hard to say. I still have some esophageal spasm <strong>with</strong><br />

eating, but no repeat of the Friday episode. Epigastric pain has diminished. I have a sore<br />

throat, either from the procedure or I am getting a cold. I am eating mostly yogurt,<br />

pudding, soup and other predominantly soft foods <strong>with</strong> little solid food. I have lost 3<br />

pounds since last week. I didn't get much sleep last night, but I feel somewhat better this<br />

morning.<br />

The plan is to carry on <strong>with</strong> my usual activities for now.<br />

Posted by David Shuster at 10:01AM (-08:00)<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong><br />

109

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