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My Battle with Merkel Cell Cancer

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pull together. The day went from normal to high gear.<br />

<strong>My</strong> youngest brother, Michael, helped my mom get my dad ready to go to the hospital. In<br />

the meantime, my other brother, Brian, was still recovering from his Saturday surgery.<br />

Brian wasn't feeling great. In the midst of it all, my mom had to go to the doctor. To top it<br />

off, my youngest daughter, Bel, stopped getting ready for school and started complaining<br />

she didn't feel good. She was off to the doctor. I had a regularly scheduled doctor's<br />

appointment.<br />

<strong>My</strong> dad was scheduled to have a PEG feeding tube and a new (smaller) stent put in at<br />

noon, and was supposed to be at the hospital for 10:30. So the morning went like this:<br />

8:45 <strong>My</strong> wife, Dana, took Sara to school<br />

8:45 I took Eva to school<br />

9:00 I went to Home Depot to buy a wireless doorbell for dad to use as a call button<br />

(press downstairs, rings upstairs)<br />

9:15 Mom went to the doctor<br />

9:40 I went to the doctor<br />

9:45 Mom drops off an antibiotics prescription at CVS, they say they can't fill it fast<br />

enough so she can get home in time to take dad to the hospital.<br />

10:00 Michael had arranged to have a supplier come over and evaluate whether a chair<br />

lift can be installed on the staircase. Michael handles the visit, but it doesn't look like it is<br />

going to be something that makes sense to do.<br />

10:10 <strong>My</strong> wife Dana volunteers to pick up my mom's prescription at CVS and take it to<br />

the hospital.<br />

10:15 I pull up at my parents' house as they're putting my dad in the car<br />

10:16 Youngest brother Michael drives my dad's car to the hospital; I drive my car to the<br />

hospital; my mom drives my dad in her car to the hospital. Turns out we actually needed<br />

the flexibility of multiple cars, so lack of carpooling was good<br />

10:30 Shuster caravan arrives at hospital<br />

10:45 Dana arrives <strong>with</strong> the prescription. CVS gave her my dad's prescription, not my<br />

mom's. <strong>My</strong> mom needs those antibiotics. Dana heads back to CVS to get the<br />

prescription. Dana doesn't complain at all, which is more than I could have pulled off.<br />

11:15 Dana arrives <strong>with</strong> the correct prescription. We discuss registering Sara (our middle<br />

daughter) for Kindergarten, which apparently requires camping out at the school by 6:00<br />

a.m. tomorrow in order to avoid getting assigned to a school all the way across town. We<br />

realize that we have a problem because Bel's doctor appointment is 2:00 pm and we<br />

won't have a free person to pick up my oldest daughter Eva at 3:05 p.m. Dana calls<br />

Margaret (Eva's mom, my ex-wife) and she cancels her doctor's appointment so Eva can<br />

take the school bus to her house. I'm super-thankful for a very functional blended family.<br />

11:45 Dad is having pain and gets a painkiller via IV (the IV went it <strong>with</strong>out much<br />

difficulty, a good thing)<br />

12:00 Dad is taken to the endoscopy suite, then a bit later to radiology where the<br />

procedure will be done.<br />

12:05 We all talk <strong>with</strong> Dr. Lewis. Michael, mom and I are sent to the waiting room.<br />

12:10 We wait.<br />

1:00 Dr. Lewis gets us, and tells us the procedure went well. He walks us back to where<br />

dad is. We ask him what the biopsy results were from the sample he took on Friday when<br />

removing the stent, and he said he didn't have them yet, but that Dr. Flam would have<br />

them. Mom puts in a call to Dr. Flam asking for them.<br />

1:10 Michael goes home to keep an eye on Brian. Mom and I wait for dad to wake up.<br />

1:30 Dad wakes up, we visit <strong>with</strong> him, he's barely awake. We go back to the waiting room<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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