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My Battle with Merkel Cell Cancer

My Battle with Merkel Cell Cancer

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The Plan is Finalized<br />

Tuesday, July 05, 2011<br />

I quote from my brother Robert. "The reason people retire is so that they will have time to<br />

visit doctors."<br />

Between now and August 15, I will have 25 visits for radiation, 5 visits for chemotherapy,<br />

5 evaluations by Dr. Flam, 5 status checks <strong>with</strong> Dr. John and a visit to by internist, Dr.<br />

Holmes. I think I also have a dental check-up coming up.<br />

Today, it was Dr. Flam. You can't escape his office <strong>with</strong>out labs.<br />

The bone marrow suppression from my prior chemo continues.<br />

White count is down from 5900 to 3500, Hemoglobin is down to 10.9 from 11.2. Platelets<br />

are still normal but down from 182,000 t0 158,000.<br />

<strong>My</strong> symptoms are unchanged.<br />

The most troubling is still hearing loss, <strong>with</strong> a buzzing sound when there is speech,<br />

particularly from male voices, including my own. Female voices seem to sound tinny. I<br />

hear the sounds, but its like a foreign language, of which I know many words but miss<br />

enough to often lose comprehension. The buzzing sound is something I can't find<br />

reviewing the web for hearing disorders.<br />

The dry mouth and loss of taste continue.<br />

The plan is to have radiation treatment <strong>with</strong> chemosensitization. I was reluctant to have<br />

5FU, and the first words from Dr. Flam were "I don't want to give you 5FU." The drug to<br />

be used is Taxotere, <strong>with</strong> a generic name of Docetaxel. This is given at 1/3 of the dose<br />

which would be given for its chemotherapeutic effect.<br />

Side effects include anemia, low white count,fluid retention, peripheral<br />

neuropathy,nausea, diarrhea, mouth sores,hair loss, fatigue, weakness,and infections.<br />

Less common side effects include vomiting,muscle and joint pain, low platelets, and<br />

abnormal liver function.<br />

Because I am receiving a relatively low dose, I do not expect the side effects to be<br />

severe.<br />

Here are some additional observations.<br />

Since I was diagnosed <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> Carcinoma, I have not been sick. No colds or flu.<br />

Since chemotherapy, my patches of eczema, whith I think are probably mild psoriasis<br />

have disappeared.<br />

I have lost about 23 pounds, and my cholesterol numbers have improved.<br />

I have great health coverage. So far, between Medicare and Blue Cross, I have paid<br />

almost nothing out of pocket for all the care I have received.<br />

I am looking beyond August. Between August 15 and the end of 2011, we have planned<br />

a family cruise in December. Judy and I will take a west coast cruise at the end of<br />

September.<br />

We will also visit Mike and Leanna, Sammie and Eli, probably in October, and go to<br />

Montreal to visit my mother, perhaps on the same trip to the East.<br />

In between, while in Fresno, I hope to work part time. (To pay for all this).<br />

Posted by David Shuster at 02:48PM (-07:00)<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong><br />

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