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My Battle with Merkel Cell Cancer

My Battle with Merkel Cell Cancer

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WBC count 4.5-11.0 K/mcL<br />

Platelet 150-400 K/mcL<br />

RBC count 4.70-6.10 M/mcL<br />

Hemoglobin 14.0-18.0 g/dL<br />

Neutrophil 2.60-8.20 K/mcL<br />

Dad was hospitalized on Feb. 19, so a week after his hospitalization, his counts had not<br />

yet recovered. His immune system (apparently Neutrophil is a key thing) was essentially<br />

non-functional until 10 days after hospital admission, and not normal until 12 days after<br />

admission. His blood (taken upon admission) was positive for gram positive cocci in<br />

clusters, and eventually cultured to show presence of a particular strain of staph. He was<br />

given broad antibiotic coverage initially, then the coverage was reduced to target the<br />

identified strain of bacteria. After he developed a new fever, his coverage was again<br />

broadened.<br />

Dad was moved out of the ICU around midnight on Feb. 23. He was moved into a regular<br />

room <strong>with</strong> neutropenic isolation because of the compromised immune system. This<br />

meant lots of hand washing and wearing a mask. Note to caregivers: Do not try to drink<br />

hot tea <strong>with</strong> a mask on -- I did it twice before I realized I should just not bring drinks into<br />

the room.<br />

Because it was unclear what the initial source of staph was, and because of concern that<br />

the port was either the cause of the infection or had become infected, the port was<br />

removed on Feb. 26.<br />

His heart rate went from 80 to 90 around Feb. 26, then from 90 to 100 on Feb. 27. On<br />

Feb. 28, he stayed awake from mid-afternoon more or less all night. Around 2:30 am he<br />

developed sinus tach at 120 beats per minute, and around 3:00 am he developed atrial<br />

fibrillation at around 140 beats per minute. When dad heard that, he said "oh shit". Some<br />

say doctors make the worst patients, but I think it must be scariest for doctors when they<br />

are patients. They know exactly what they should be scared of.<br />

At that point, I called my mom and let her know what was going on. I intended to let her<br />

know to come in early, but of course she instead decided to come in immediately.<br />

They gave him an IV medication to restore normal rhythm, and his heart rhythm became<br />

normal and his rate dropped back to around 102 to 105 beats per minute. The rate<br />

became normal shortly thereafter. On top of everything else, his pain from the stent was<br />

spiking at that moment. His temperature went from 38.1 to 37.7 back to 38.4 that night.<br />

By the morning, his fever was down to 99.7 (yes, I'm aware that switching between<br />

centigrade and Fahrenheit is confusing) and his pulse was 89.<br />

His antibiotic coverage was broadened, and his temperature returned to normal (or a bit<br />

below normal actually). By February 29, his immune system had recovered enough to<br />

discontinue the isolation precautions. Finally, I can sit next to him and smile <strong>with</strong>out<br />

having a mask covering it all up.<br />

On the morning on March 1, after a few days of rainy, cloudy weather, the sun rose to a<br />

beautiful purple sky that quickly transitioned to blue. There were some clouds, but they<br />

were distant on the horizon. It was an unexpected but wonderful metaphor.<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong><br />

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