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My Battle with Merkel Cell Cancer

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the symptom gets worse.<br />

The generic for Zofram anti-nausea drug was not approved by by our Medicare Part D<br />

provider. $21.95 for 8 pills. An advisor at Dr Flam's office, Patty, who was very helpfull,<br />

established my right to coverage under Medicare Part B as I am having "in-office<br />

chemotherapy". This reduced the price to $7.30. Out of interest, she called Winton's<br />

Pharmacy in Fresno and got a quote of $1200 for 100 non-generic Zofram. What a<br />

racket.<br />

Tomorrow should be a repeat of today, and then a brief visit Saturday for a subcutaneous<br />

shot of Neulasta.<br />

Symptom to expect as a result of the Solucortef: Insomnia.<br />

Symptom to expect as a result of Chemotherapy: Fatigue.<br />

What a combination. Fatigue but insomnia. Can't stay awake, can't fall asleep.<br />

So far it is a draw, as I fell asleep <strong>with</strong>out difficulty, but my old man prostate woke me up<br />

after about 3,5 hours and then it was very difficult to get back to sleep,<br />

Stay tuned for updates.<br />

Posted by David Shuster at 06:42PM (-07:00)<br />

Update Five Days After Cisplatin<br />

Monday, May 02, 2011<br />

It is Monday, May 2, 2011. On Friday, I had the third session of chemotherapy <strong>with</strong> VP16,<br />

along <strong>with</strong> all the other medications they routinely give. This went off <strong>with</strong>out incident<br />

except that they wanted me to have labs drawn, and made me wait for the lab tech to<br />

draw the blood when I could have been starting the chemo. It makes no sense to stick a<br />

vein when the port is going to be used the same time for chemo. On days when there is<br />

no chemo, get the labs from a vein. On days when there is chemo, get the labs from the<br />

port. This resulted in a half hour delay in getting started, no big deal.<br />

On Saturday, I went for my shot of Pelfilgrastim (Neulasta), a drug which stimulates the<br />

growth of healthy white blood cells. The shot is given into the subcutaneous tissues. I<br />

took mine in the left arm. There is a 30% incidence of bone pain from this drug but I had<br />

no symptoms.<br />

Neulasta Link<br />

On Wednesday, I have an appointment <strong>with</strong> Dr Flam. The following Wednesday, again,<br />

and the second round of chemo will begin May 17.<br />

I am feeling fairly well at this time. The spasms in my chest have reduced. Could this<br />

mean the chemo is working? I am more fatigued than I am used to, going to bed at 10:00<br />

PM instead of close to midnight. I am having some constipation <strong>with</strong>out significant<br />

discomfort, and waking every 2 hours to void. I suspect this may be due to the Zofram,<br />

which I stopped this morning as I am not at all nauseated.<br />

Zofran Link<br />

The surgical site in the abdomen and the port insertion site have healed well.<br />

I a trying to resume some activities, going to the bridge club today and tomorrow<br />

morning, driving, walking the dog and watching the inept San Francisco Giants blow<br />

baseball games.<br />

I hope to post a follow-up after my visit <strong>with</strong> Dr Flam.<br />

I thank the so many people who have offered their prayers and encouragement.<br />

Posted by David Shuster at 07:34PM (-07:00)<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong><br />

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