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My Battle with Merkel Cell Cancer

My Battle with Merkel Cell Cancer

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110<br />

Another Esophageal Dilatation Scheduled<br />

Wednesday, January 18, 2012<br />

Today, I had a follow-up appointment <strong>with</strong> Dr. Lewis. I am still having symptoms of my<br />

esophageal stricture. This morning, I ate some cereal for breakfast and 3 small pills, after<br />

which even coffee would not go down. Presumably the pills were enough to block the<br />

esophagus.I was uncomfortable all morning, <strong>with</strong> esophageal pain and some pain<br />

referred to my back. For lunch, I had a bowl of soup and a bottle of Boost Plus and that<br />

went down OK. Dr. Lewis told me he dilated <strong>with</strong> Bougies, which are tapered tubes, up to<br />

56 French, which corresponds to almost 19 mm. The most he will go to is 60 French or<br />

20 mm. He could tell that there was a fairly long segment, about 4-5 cm of narrowing,<br />

andI had some bleeding and pain from the dilatation. Fortunately, I don't have any<br />

memory of the pain.<br />

So why do I still have symptoms? It could be largely spasm, which could be treated by<br />

Beta Blockers or Nitroglycerine. The latter would have a major side effect of headaches.<br />

His inclination is to dilate again, and this will be done Monday afternoon. Sorry, Bert, our<br />

bridge game for Monday will be cancelled.<br />

In the meantime, it is going to be a mainly liquid diet, ingested very slowly for the next 5<br />

days.<br />

Apart from this, I have developed an upper respiratory infection, the first since I was<br />

diagnosed <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> Carcinoma. This has not helped, but it seems to be<br />

improving.<br />

Hopefully, this will all be taken care of before mid February, as I have two bridge<br />

tournaments planned, followed by a cruise to Hawaii.<br />

Captain, O Captain, don't go too close to shore.<br />

I love to hear (from a distance), the ocean's soothing roar.<br />

Use the Tenders as Tenders, I love those Tender rides,<br />

Don't use them as lifeboats, <strong>with</strong> the ship listing on its side.<br />

But if the ship were to unfortunately go down,<br />

Rather than die of <strong>Merkel</strong>'s, I would choose to drown.<br />

Posted by David Shuster at 02:41PM (-08:00)<br />

I Need Help Today<br />

Friday, January 20, 2012<br />

Last night at dinner, I tried to eat a fried egg, and got blocked up. I expected the blockage<br />

to ease off as it has in the past, but it is now 16 hours, and nothing goes down. I have to<br />

spit out my saliva. I am having constant pain. I have had no sleep. Dr. Lewis is off today,<br />

but Dr. Cano, his associate, will try to take care of me today at noon.<br />

Poor Judy. Everyone has problems. One son will have sinus surgery soon. Another will<br />

have cystoscopy for occult hematuria. Another will come to Fresno Monday to have<br />

endoscopy Tuesday for what I think is gastric outlet obstruction. Her sister probably<br />

needs to have multiple teeth pulled and a second hip replacement. On top of all this, the<br />

dog has a severe limp and had great difficulty getting down the stairs this morning.<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong>

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