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My Battle with Merkel Cell Cancer

My Battle with Merkel Cell Cancer

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Here is the rant.<br />

<strong>My</strong> appointment was for 10 AM. At 11, I was weighed. At 11:50, I was called back for the<br />

nurse to draw blood from my port and replace the Huber needle. I was not seen by Dr.<br />

Flam until 1:30, and did not get out of the office until close to 2:00 PM.<br />

Late in the afternoon, Judy went to pick up the prescription, which was supposed to have<br />

been called in to the pharmacy. They didn't have it.<br />

There were many patients grumbling in the waiting room, some very sick and waiting to<br />

have chemotherapy.<br />

There has to be a better way. Even the Cheesecake Factory gives pagers to those<br />

waiting for a table.<br />

In Dr. Flam's defense, his Physician's Assistant recently left and has not yet been<br />

replaced, and he was seeing about 100 patients that day. I pointed out to him that the<br />

waiting times were excessive, and he shrugged it off to being very busy. He gave<br />

instructions for me to be the first patient of the day when I see him in 2 weeks. This does<br />

not change the fact that the office could be organized to reduce waiting times for all.<br />

Posted by David Shuster at 04:27PM (-07:00)<br />

<strong>My</strong> 71st Birthday Photo<br />

Thursday, August 18, 2011<br />

This is what it is all about. Here is a photo of me <strong>with</strong> 3 of my granddaughters, Eva (age<br />

10), Sara (age 4) and Bel (age 2).<br />

Posted by David Shuster at 05:29PM (-07:00)<br />

Substantial Improvement Since my Last Post<br />

Thursday, August 25, 2011<br />

Last Tuesday, I had a brief visit <strong>with</strong> the nurse. <strong>My</strong> labs are still not great, but my<br />

Hemoglobin is up to 11gm from 9.9. <strong>My</strong> white count and platelets are slightly low. I have<br />

been off parenteral nutrition since last Saturday morning and have begun eating much<br />

better. I am still losing weight but I suspect much of that as retained fluid. <strong>My</strong> taste buds<br />

are improving daily. Last night I had a small steak and it tasted like, well, you know,<br />

steak!<br />

The white coating on my tongue has improved, but not disappeared, so I renewed my<br />

<strong>My</strong> <strong>Battle</strong> <strong>with</strong> <strong>Merkel</strong> <strong>Cell</strong> <strong>Cancer</strong><br />

91

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