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10–6 | <strong>Clinical</strong> <strong>Manual</strong> <strong>for</strong> <strong>Management</strong> <strong>of</strong> <strong>the</strong> <strong>HIV</strong>-<strong>Infected</strong> Adult/2006<br />

How Should Patient Education Be Provided?<br />

Rarely are patients able to absorb all <strong>of</strong> <strong>the</strong> necessary<br />

in<strong>for</strong>mation in a single session. Attention and<br />

<strong>com</strong>prehension levels are optimal during <strong>the</strong> first 15-<br />

20 minutes <strong>of</strong> a visit, after which an individual’s ability<br />

to absorb and retain in<strong>for</strong>mation declines. There<strong>for</strong>e,<br />

clinics should consider strategies to integrate <strong>the</strong>se<br />

patient education messages throughout <strong>the</strong> course <strong>of</strong><br />

patient care and to engage patients in this process.<br />

Support groups, case managers, and peer educators can<br />

be invaluable in this process <strong>of</strong> engagement.<br />

It is also important to keep <strong>the</strong> medical in<strong>for</strong>mation<br />

specific to <strong>the</strong> patient. Although <strong>the</strong>re are some areas <strong>of</strong><br />

education that should be considered <strong>for</strong> all patients (see<br />

above), patients should not be required to have a high<br />

level <strong>of</strong> understanding in each area. Patients should be<br />

given <strong>the</strong> opportunity to learn as much about an area as<br />

<strong>the</strong>y would like and to retain <strong>the</strong> volume <strong>of</strong> in<strong>for</strong>mation<br />

necessary to keep <strong>the</strong>m healthy and safe. For example, in<br />

<strong>the</strong> area <strong>of</strong> “What is <strong>HIV</strong>?” <strong>the</strong>re may be some patients<br />

who want to know details about <strong>the</strong> basic science and<br />

immunologic impact <strong>of</strong> <strong>HIV</strong>. With this in<strong>for</strong>mation,<br />

<strong>the</strong>se patients might <strong>the</strong>n want to take <strong>the</strong> lead in<br />

making treatment and care decisions <strong>for</strong> <strong>the</strong>mselves, in<br />

consultation with <strong>the</strong>ir care providers. O<strong>the</strong>r patients,<br />

however, would feel overwhelmed by this volume <strong>of</strong><br />

in<strong>for</strong>mation and involvement and may be best engaged<br />

in participating in <strong>the</strong>ir care by knowing how <strong>HIV</strong><br />

is transmitted, how to keep <strong>the</strong>mselves healthy, and<br />

how to access more in<strong>for</strong>mation if <strong>the</strong>y want it. Some<br />

patients would prefer <strong>for</strong> <strong>the</strong>ir care providers to “just tell<br />

<strong>the</strong>m what to do” ra<strong>the</strong>r than take <strong>the</strong> lead in <strong>the</strong>ir own<br />

treatment decisions.<br />

There are a number <strong>of</strong> Web sites that provide <strong>HIV</strong><br />

in<strong>for</strong>mation <strong>for</strong> patients (see Web-Based Resources<br />

chapter). Many patients may prefer this <strong>for</strong>m <strong>of</strong> selfeducation.<br />

Encourage patients to bring any in<strong>for</strong>mation<br />

<strong>the</strong>y discover to clinic <strong>for</strong> fur<strong>the</strong>r discussion. Reminding<br />

patients that <strong>the</strong>y can be teachers as well as students can<br />

be a useful strategy <strong>for</strong> engaging patients in this process.<br />

In addition, patients may learn <strong>of</strong> novel tools and<br />

in<strong>for</strong>mation sources that could be useful to o<strong>the</strong>rs.<br />

The following are some useful suggestions that providers<br />

can convey to <strong>the</strong>ir patients:<br />

♦<br />

♦<br />

♦<br />

♦<br />

♦<br />

♦<br />

Define your goals <strong>for</strong> each visit; please let your<br />

provider know your concerns and what you hope to<br />

learn in <strong>the</strong> course <strong>of</strong> <strong>the</strong> visit.<br />

Write down questions and concerns as <strong>the</strong>y arise,<br />

and take that list with you to your appointments.<br />

Meet all <strong>the</strong> members <strong>of</strong> your care team and learn<br />

<strong>the</strong>ir areas <strong>of</strong> expertise and what <strong>the</strong>y might be able<br />

to <strong>of</strong>fer you.<br />

Ask about support groups and o<strong>the</strong>r peer groups that<br />

might be able to provide support/education.<br />

Review brochures and/or Web sites that provide<br />

additional in<strong>for</strong>mation.<br />

Ask supportive friends or family members to<br />

ac<strong>com</strong>pany you to clinic visits. They may be able<br />

to obtain in<strong>for</strong>mation that is helpful <strong>for</strong> <strong>the</strong>ir role<br />

in supporting your health or reminding you <strong>of</strong><br />

in<strong>for</strong>mation discussed at visits.

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