Here - Health Promotion Agency

Council for Disabled Children
8 Wakley Street
London EC1V 7QE
(020) 7843 1900
www.ncb.org.uk/cdc
Information for parents and details of
all organisations offering help with
particular disabilities.
Cystic Fibrosis Trust
11 London Road
Bromley BR1 1BY
(020) 8464 7211
0845 859 1000 (support helpline)
www.cftrust.org.uk
In Northern Ireland:
12 Selshion Manor
Portadown BT62 1AF
(028) 3833 4491
Information and support for parents of
children with cystic fibrosis and for
people worried about the possibility of
passing on the illness. Local groups.
Diabetes UK
10 Parkway
London NW1 7AA
(020) 7424 1000 (admin)
0845 120 2960 (careline
Mon-Fri 9am-5pm)
(020) 7424 1031 (textphone)
www.diabetes.org.uk
In Northern Ireland:
Suite 8
Bridgewood House
Newforge Business Park
Newforge Lane
Belfast BT9 5NW
(028) 9066 6646
Information and support for all
people with diabetes.
Down’s Syndrome Association
Langdon Down Centre
2a Langdon Park
Teddington TW11 9PS
0845 230 0372 (Mon-Fri
10am-4pm)
enquiries@downssyndrome.co.uk
www.downssyndrome.org.uk
In Northern Ireland:
Graham House
Knockbracken Healthcare Park
Saintfield Road
Belfast BT8 8BH
(028) 9070 4606
Information, advice, counselling and
support for parents of children with
Down’s syndrome. Local groups.
Haemophilia Society
First Floor
Petersham House
57a Hatton Garden
London EC1N 8JG
(020) 7381 1020
(0800) 0186 068 (helpline
Mon-Fri 10am-4pm)
www.haemophilia.org.uk
Information, advice and practical
help for families affected by
haemophilia and other bleeding
disorders. Some local groups.
The HIV Support Centre (NI)
The Centre at the
Warehouse
3rd floor
7 James Street South
Belfast BT2 8DN
0800 137 437 (Mon-Fri 9am-
5pm and 7pm-10pm, Sat
2pm-5pm)
028 9024 9268
www.thehivsuppportcentre.o
rg.uk
Free confidential helpline for advice
on sexual health, HIV, AIDS and all
other STIs.
(I CAN) Invalid Children’s
Aid Nationwide
4 Dyer’s Building
Holborn
London EC1N 2QP
(0845) 225 4071
www.ican.org.uk
Advice and information for parents
of children with speech and
language difficulties.
Meningitis Research Foundation
Midland Way
Thornbury
Bristol BS35 2BS
(01454) 281 811
080 8880 33 44 (24-hour
national helpline)
www.meningitis.org
In Northern Ireland:
71 Botanic Avenue
Belfast BT7 1JL
(028) 9032 1283
Provides a support network for
families who are bereaved and help
and information to families with
someone currently ill or recovering
from meningitis and septicaemia.
Meningitis Trust
Fern House
Bath Road
Stroud GL5 3TJ
(01453) 768 000
0800 028 1828 (24-hour helpline)
www.meningitis-trust.org
In Northern Ireland:
Wellington Park Business Centre
3 Wellington Park, Malone Road
Belfast BT9 6DJ
0845 120 2123
0800 028 18 28 (freephone
24-hour helpline)
Information and support for those
already affected by meningitis. Local
groups.
Muscular Dystrophy Campaign
7-11 Prescott Place
London SW4 6BS
(020) 7720 8055 (helpline
Mon-Fri 9am-1pm, 2pm-5pm)
www.musculardystrophy.org
Provides support and advice through
local branches and a network of
Family Care Officers.
National Autistic Society
393 City Road
London EC1V 1NG
(020) 7833 2299
393 City Road
London EC1V 1NG
0845 070 4004 (autism
helpline Mon–Fri 10am–4pm)
www.nas.org.uk
Provides day and residential centres
for the care and education of
autistic children. Puts parents in
touch with one another. Advice and
information. Local groups.
National Deaf Children’s
Society (NDCS)
15 Dufferin Street
London EC1Y 8UR
(020) 7490 8656
(voice/minicom)
0808 800 8880
(voice/minicom helpline
Mon-Fri 10am-5pm)
www.ndcs.org.uk
In Northern Ireland:
Wilton House
5 College Square North
Belfast BT1 6AR
(028) 9031 3170
(028) 9027 8177 (text)
Works for deaf children and their
families. Information and advice on
all aspects of childhood deafness.
Local self-help groups.
National Eczema Society (NES)
Hill House
Highgate Hill
London N19 5NA
(020) 7281 3553
0870 241 3604 (helpline
Mon-Fri 8am-8pm)
www.eczema.org
In Northern Ireland:
9 Notting Hill
Malone Road
Belfast BT9 5NS
(028) 9066 6393 (after 6pm)
Support and information for people
with eczema and their families.
Nationwide network of local contacts
offering practical advice and support.
Parents and Professionals
and Autism (PAPA) (NI)
Donard House
Knockbracken Healthcare Park
Saintfield Road
Belfast BT8 8BH
(028) 9040 1729
0845 055 9010 (helpline
Mon/Wed/Fri 9.30am-1pm)
www.autismni.org
Provides information, advice,
training and research. Raises
awareness. Local branches.
Positively Women
347-349 City Road
London EC1V 1LR
(020) 7713 0444 (admin)
(020) 7713 0222 (helpline
Mon-Fri 10am-1pm, 2pm-4pm)
www.positivelywomen.org.uk
Offers counselling and support
services to HIV positive women.
Reach (The Association for
Children with Hand or Arm
Deficiency)
Reach Head Office
PO Box 54
Helston
Cornwall TR13 8WD
0845 130 6225 (Mon–Fri
9am–5pm)
www.reach.org.uk
Information and support to parents
of children with hand or arm
problems. Local groups.
Restricted Growth
Association
PO Box 4008
Yeovil BA20 9AW
(01935) 841 364 (Mon, Wed,
Thu 9am–5pm, Tue
9am–5pm, 6pm–9pm,
Fri 9am–12 noon)
www.rgaonline.org.uk
Aims to help reduce the distress
and disadvantages of persons of
restricted growth by providing
information, counselling, family
support, friendship and other forms
of practical help.
Royal National Institute of
the Blind (RNIB)
105 Judd Street
London WC1H 9NE
(020) 7388 1266
0845 766 9999 (helpline –
interpreters available Mon-
Fri 9am-5pm (Wed 4pm))
www.rnib.org.uk
In Northern Ireland:
40 Linenhall Street
Belfast BT2 8BA
(028) 9032 9373
Information, advice and services for
blind and partially sighted people.
Local branches.
Royal National Institute for
the Deaf (RNID)
19-23 Featherstone Street
London EC1Y 8SL
(020) 7296 8000
0808 808 0123 (infoline)
0808 808 9000 (textphone)
www.rnid.org.uk
In Northern Ireland:
Wilton House
5 College Square North
Belfast BT1 6AR
(028) 9023 9619 (voice/text)
(028) 9031 2033
(answerphone)
(028) 9043 8354
(videophone)
Information, advice and services for
deaf and hard of hearing people.
Local groups.
SCOPE
6 Market Road
London N7 9PW
(0808) 800 3333 (helpline
Mon-Fri 9am-9pm, Sat 2pm-
6pm)
www.scope.org.uk
Offers advice and support to
parents of children with cerebral
palsy. Local groups.
SENSE (National Deaf-Blind
and Rubella Association)
11-13 Clifton Terrace
Finsbury Park
London N4 3SR
0845127 0060
0845127 0062 (minicom)
www.sense.org.uk
In Northern Ireland:
The Manor House
51 Mallusk Road
Mallusk BT36 4RU
(028) 9083 3430
(028) 9083 3430 (minicom)
Advice and support for families of deafblind
and rubella-disabled children.
Sexual Health Line
0800 567 123 (24-hour helpline)
www.playingsafely.co.uk
Free and confidential advice about
HIV, AIDS, sexual health, sexually
transmitted infections, local services,
clinics and support services.
Sickle Cell Society
54 Station Road
Harlesden
London NW10 4UA
(020) 8961 7795
www.sicklecellsociety.org
Information, advice, and counselling
for families affected by sickle cell
disease or trait. Financial help when
needed. Local groups.
Terrence Higgins Trust
0845 1221 200 (helpline Mon-Fri
10am-10pm, Sat, Sun 12pm-6pm)
0800 096 7500 (African AIDS
helpline)
www.tht.org.uk
Free and confidential advice about all
matters connected with HIV and AIDS.
UK Thalassaemia Society
19 The Broadway
Southgate Circus
London N14 6PH
(020) 8882 0011
www.ukts.org
Information, and advice for families
affected by thalassaemia.
LONE PARENTS
Gingerbread
307 Borough High Street
London SE1 1JH
(020) 7403 9500
0800 018 4318 (advice line
Mon-Fri 10am-12 noon,
1pm-3pm)
www.gingerbread.org.uk
In Northern Ireland:
169 University Street
Belfast BT7 1HR
(028) 9023 1417
0808 808 8090 (advice line
9am-5pm)
www.gingerbreadni.org
Self-help association for one-parent
families. Local groups offer support,
friendship, information, advice and
practical help.
National Council for One
Parent Families
255 Kentish Town Road
London NW5 2LX
0800 018 5026 (Mon- Fri 9am-
5pm (Wed 8pm))
www.oneparentfamilies.org.uk
Free information for lone parents on
issues including maintenance, tax credits,
benefits, work, education, legal rights,
childcare and holidays. Also information
about other organisations and local
groups which may be able to help.
LOSS AND BEREAVEMENT
The Child Bereavement Trust
Aston House
High Street
West Wycombe
Buckinghamshire
HP14 3AG
(01494) 446 648
0845 357 1000 (helpline)
www.childbereavement.org.uk
Resources for bereaved families.
Compassionate Friends
53 North Street
Bristol BS3 1EN
0845 123 2304 (helpline
(10am- 4pm, 6.30pm-10.30pm
7 days a week)
www.tcf.org.uk
An organisation of and for bereaved
parents and families. Advice and
support. Local groups.
CRUSE Bereavement Care
Unit 0.1
One Victoria Villas
Richmond
Surrey TW9 2GW
(020) 8939 9530 (admin)
0844 477 9400 (day-by-day
helpline)
0808 808 1677 (young
person’s helpline Mon–Fri
9.30am–5pm)
www.crusebereavementcare.
org.uk
In Northern Ireland:
Piney Ridge
Saintfield Road
Belfast BT8 8BH
(028) 9079 2419
A nationwide service of emotional
support, counselling and information
to anyone bereaved by death,
regardless of age, race or belief. Local
groups.
Foundation for the Study of
Infant Deaths (Cot Death
Research and Support)
Artillery House
11-19 Artillery Row
London SW1P 1RT
(020) 7222 8001
(020) 7233 2090 ( helpline)
www.fsid.org.uk
In Northern Ireland:
Friends of the Foundation
for the Study of Infant
Deaths
(028) 3833 2985
Support and information for parents
bereaved by a sudden infant death and
gives new parents advice on reducing
risk of cot death.
Stillbirth and Neonatal
Death Society (SANDS)
28 Portland Place
London W1B 1LY
(020) 7436 7940
(020) 7436 5881 (helpline
Mon-Fri 9.30am-5.30pm)
Supports anyone affected by the
death of a baby and promotes
research to reduce the loss of
babies’ lives.
In Northern Ireland
07740 993 450 (helpline - this
will always be answered by
someone with direct
experience of losing a baby
who can provide information
on support groups run by and
for bereaved parents in
Northern Ireland).
Widwods
c/o 60 Rocks Park
Uckfield
East Sussex TN22 2AX
(01825) 765 084 (evenings)
Small support group of young widows
aiming to provide practical and
emotional support for those who
experience the loss of partners.
Please include an SAE for written
replies to any query.
NAPPIES
The National Association of
Nappy Services
To find a nappy laundry
service in your area call
(0121) 693 4949 or visit
www.changeanappy.co.uk
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