A Transition Guide for All Services - Transition Information Network

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Leeds Young Adults TeamSince 1988 the Leeds Young Adults Team (YAT) has providedsupport and practical help to physically disabled young peopleaged between 16 and 25 to help them achieve the lifestyle theywant. The team is made up of physiotherapists, doctors and stafffrom clinical psychology, occupational therapy, family planning,speech and language therapy, and social work teams. Researchinto the effectiveness of the service found that, ‘Young disabledpeople given YAT services were 2.5 times more likely to participatein a range of activities than those given ad hoc support services –and cost-effectiveness analysis showed no difference betweenthese two forms of support.’ 32For more information about the Leeds Young Adults Team go towww.leedsyat.nhs.uk.Chapter 2: Overview of statutory servicesHealth services32 Bent N, Tennant A,Swift T, Posnett J,Scuffham P, ChamberlainM, ‘Team approachversus ad hoc healthservices for youngpeople with physicaldisabilities: aretrospective cohortstudy’, The Lancet,Volume 360, Issue 9342,pp 1280–6, N Bent,A Tennant, T Swift,J Posnett, P Scuffham,M Chamberlain42ProtocolsSome areas have developed clear, effective protocols to support disabledyoung people in their transition to using adult health services.BirminghamIn Birmingham transfer of young people with arthritis from thepaediatric to the adolescent clinic is flexible, depending on the patientand their illness, but usually occurs at 13–14 years. A further transfer toadult care occurs from age 16–18 years to the adult rheumatologist.Dedicated older adolescent/young adult rheumatology clinics havebeen developed at the City Hospital and Selly Oak Hospital which willfacilitate shared care in late adolescence.The rheumatology team will consider the key elements that havebeen identified for an effective transition programme and willensure they are incorporated into their departmental policies,business case planning and discussions with commissioners. Theneeds of parent(s)/guardians during transition will also beacknowledged and addressed. It should be noted that rheumatologyservices tend to be quite different from more general services, manyof which would not have the resources for this type of support.The transitional programme starts at age 11 and was developedfollowing an extensive needs assessment. Resources and toolsused in this programme are available on the team websitewww.dreamteam-uk.org.See Appendix 4 for example of a health transition pathway.Further examples of effective practice are available fromwww.transitioninfonetwork.org.uk.Quality standards checklistsChecklists B7, B8 and B9 in Appendix 6 highlight key activity in developingeffective service transfer.
Key legislation, guidance and resourcesHealth and Social Care Act 2001NHS Act 2006Education Act 1996Special Educational Needs Code of Practice, 2001, DfESValuing People: A new strategy for learning disability for the 21st century,2001, DHNational Service Framework for Children, Young People and MaternityServices, 2004, DH and DfESOur health, our care, our say: a new direction for community services, HealthWhite Paper, 2006, DHIntegrated multi agency transitional care pathway for young people with lifethreatening and life limiting conditions, 2007, Association for Children’sPalliative Care www.act.org.ukAdolescent transition care: guidance for nursing staff, 2004, www.rcn.org.ukBridging the Gaps: Health Care for Adolescents, 2003, Royal College ofPaediatrics and Child Health, www.rcpch.ac.ukTransition: getting it right for young people. Improving the transition of youngpeople with long term conditions from children’s to adult health services,2006, DH and DfES, www.dh.gov.uk/transitionAdditional practical health guidance is currently being produced by theDH. The guide will be published in Autumn 2007. Information aboutthe guide will be posted on the CSIP website: www.csip.org.uk and onwww.transitioninfonetwork.org.ukFurther information on legislation and guidance can be found in theresources pages at the back and in Appendices 1 and 2.Chapter 2: Overview of statutory servicesHealth servicesConnexions, information advice and guidanceprofessionals‘The quality standards will cover the full range of issues on which youngpeople might seek IAG, not just careers and learning. They will coverservices for 11–19 year olds, and young people with learning difficulties anddisabilities up to their 25th birthday. We will be consulting widely duringtheir development.’ 3333 Youth Matters, NextSteps, 2006, DfES.Proposals on future IAGprovision.?WhoDisabled young people, families, Connexions personal advisers (PAs), careersadvisers, Jobcentre Plus staff, information, advice and guidance (IAG) workers?WhereConnexions one-stop shops, schools, Jobcentre Plus, colleges, universities,local authorities43
Page 3: All young people have dreams and as
Page 6 and 7: © Crown copyright 2007This handboo
Page 8 and 9: ContentsIntroduction 1Chapter 1 The
Page 10 and 11: AcknowledgementsWritten byHelen Whe
Page 12: Why is transition so difficult to g
Page 15 and 16: Like transition itself, developing
Page 17 and 18: Developing a local transition pathw
Page 19 and 20: Transition reviews‘A distinguishi
Page 21: Disabled young people with looked a
Page 24 and 25: The Connexions PA should seek the a
Page 26 and 27: IntroductionPlanning for the future
Page 28 and 29: Access to WorkDisabled young people
Page 30 and 31: Chapter 1: The transition processPe
Page 32 and 33: services are only part of what peop
Page 34 and 35: Key legislation, guidance and resou
Page 36 and 37: ?WhoDisabled young people, families
Page 38 and 39: • Regional Partnerships www.teach
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Page 42 and 43: Effective practiceHertfordshire is
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Page 54 and 55: IntroductionCareers and guidance pr
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Page 60 and 61: Participation of families in the tr
Page 62 and 63: The Trust funds a Contact a Family
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Page 66 and 67: Workers meet regularly to share lea
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Page 88 and 89: APPENDIX 1Legislation and guidance
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Page 92 and 93: Table 3 Year 10 and 11AgencyRespons
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Page 96 and 97: APPENDIX 2Legislation, guidance and
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Guidance and government reportsEver
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Valuing People: A New Strategy for
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Promoting Disability Equality in Sc
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Table of assessmentsThe key agencie
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Appendix 3: AssessmentsChildren’s
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AimSection 140 Assessments provide
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APPENDIX 4Practice examplesAppendix
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3 Yorkshire and Humberside Partners
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Appendix 4Appendix 4: Practice exam
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• Parent/carer consultation• Yo
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APPENDIX 5Post-16 benefits andeduca
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APPENDIX 6Quality standard checklis
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Appendix 6: Quality standard checkl
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A8. Effective transition reviews -
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A12. Effective transition reviews (
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Connexions, information advice and
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C3. Providing direct payments 3 - c
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C11. Access to transport - assessme
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