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A Transition Guide for All Services - Transition Information Network

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The Trust funds a Contact a Family worker who organises theelection and training of the parent representatives and facilitatesthe running of the Parents’ Forum.As a result of this level of participation by parents, there havebeen some significant changes in service provision. These includethe promotion of a key worker service <strong>for</strong> parents/carers, thedevelopment of an inclusive summer youth scheme, and a projectto develop in<strong>for</strong>mation and support resources <strong>for</strong> parents/carersand the professionals who work alongside them.Further examples of effective practice are available fromwww.transitioninfonetwork.org.uk.Chapter 3: Participation and further supportParticipation – familiesQuality standards checklistIt is important that parents feel listened to and have enough support to fullyparticipate at a local strategic and operational level. The transition reviewChecklists B7 and B11 in Appendix 6 contain useful action points onpreparing meetings with parent and other family participation in mind. Arange of further comprehensive in<strong>for</strong>mation is available in the publicationsbelow and the Resources section on page 71.Key legislation, guidance and resourcesDisability Discrimination Act 2005. Brings in new duties to promotethe equality of disabled people and their participation in local decisionmaking and <strong>for</strong> public bodies to provide evidence of this and otheractions.Carers (Equal Opportunities) Act 2004. Rights to assessments <strong>for</strong>carers and highlighted need <strong>for</strong> support, <strong>for</strong> example to access furtherlearning.NHS Act 2006. Places a duty on health agencies to consult on serviceplanning and development with service users.Parent Participation – improving services <strong>for</strong> disabled children and theirfamilies parents pack/professionals pack, 2004, Contact a Family andCouncil <strong>for</strong> Disabled Children www.cafamily.org.uk/packsFurther in<strong>for</strong>mation on legislation and guidance can be found in theresources pages at the back and in Appendices 1 and 2.Supporting disabled young people and theirfamilies: key workers and lead professionals‘Whatever the title of the role, the critical point is that children, youngpeople and their parents or carers have access to one practitioner who actsas a single point of contact <strong>for</strong> them, who supports them in making choices52

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