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CONCLUSIONS Whereas previous research has examined positive aspects of disfigurement in particular conditions, the current study included individuals with a variety of visible differences and highlighted the similarity in positive consequences and effective coping and adjustment across visible differences. It illustrated that focus groups may be a fruitful methodology for research in this area and also highlighted the utility of taking a positive as opposed to problem-focussed approach. The current study provided insight into a broad range of cognitive mechanisms which people utilise or develop in order to foster positive adjustment to their visible difference. These findings could usefully inform interventions and further research aiming to help individuals who experience difficulty adjusting to a visible difference. 124
STUDY 6 FOCUS GROUP STUDIES OF BME COMMUNITY VIEWS OF FACIAL DISFIGUREMENT AND VISIBLE DIFFERENCES Study leads: Rodger Charlton, Krysia Saul, Mark Johnson & Nichola Rumsey Authors of this brief report and data analysts: Heidi Williamson, Jenifer Hughes, Habib Naqvi & Emma Williams We would like to acknowledge help in planning and implementing from Daya Singh, Gurnam Singh, Rukhsana Bibi, Akm Kamruzzaman, Fatima Marzia, Mahomed Saleh & Rita Saujani. 125
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Identifying the psychosocial factor
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Follow-on Studies: Emma Halliwell,
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Warwick Site (Lead: Dr. Rodger Char
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SECTION 3 Page OVERALL SYNTHESIS OF
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Study 3 3.1 Response rates for resp
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Introduction EXECUTIVE SUMMARY This
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The Impact of Appearance-Related Di
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Research Further investigation shou
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Participants were recruited from ho
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BACKGROUND & RATIONALE FOR THE RESE
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The challenge of developing compreh
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STAGE ONE (Inputs/Predisposing Fact
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In order to address the first aim o
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Role of the advisory panel in the r
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credit is due to Anjte Lindenmeyer,
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INTRODUCTION The largest part of th
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South West (via the Bristol site) a
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INPUTS/ PREDISPOSING FACTORS Age Ge
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Appearance-related processing Valen
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Anger/hostility The Refined Aggress
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RESULTS Due to the size of the data
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Figure 4.1(b) Comparative box-and-w
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Table 4.2 Correlation of quantitati
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Table 5.1(c) Frequency of number of
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Table 6.1(a) Frequency and percenta
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Table 7.1 summarises the degree of
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Figure 7.1(a): Scores on the DAS 24
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10.1 Appearance-related Social Anxi
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HADS Anxiety, and the relative magn
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10.4 Aggression When entering the v
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elatively small but statistically s
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11. Clinic Specific Data In order t
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Table 11.3: Percentage of participa
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anxiety was in the low to mild rang
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Visibility and areas of concern The
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affect and 46% for both anxiety and
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likely they are to have difficultie
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Information Attention Encoding/Stor
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such as shame, were omitted. Where
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RATIONALE In an attempt to offer pa
Page 86 and 87: FINDINGS Theme I. Descriptive Accou
Page 88 and 89: easts made her ‘flat chested’ a
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Page 92 and 93: them noticing: ‘I try to hide my
Page 94 and 95: 5.) Time Structures What was striki
Page 97 and 98: STUDY 3 LONGITUDINAL QUANTITATIVE S
Page 99 and 100: Table 3.1 Response rates for respon
Page 101 and 102: Table 3.4 Regression Model for DAS2
Page 103 and 104: Table 3.6 Regression Model for Depr
Page 105 and 106: Table 3.8 Regression Model for Posi
Page 107 and 108: 0.016), and optimism (r = -0.183, n
Page 109: and follow up). However, focusing o
Page 112 and 113: SUMMARY • Twenty-six participants
Page 114 and 115: There were ten well adjusted stable
Page 116 and 117: Stage 1 - predisposing factors - ch
Page 118 and 119: Appearance schema - beliefs about o
Page 120 and 121: “I’m in charge ...I think that
Page 122 and 123: “Only when people don’t underst
Page 124 and 125: appearance anxiety and coping with
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Page 130 and 131: SUMMARY • This study aimed to exp
Page 132 and 133: A focus group methodology was chose
Page 134 and 135: any situation. Strategies involved
Page 138 and 139: SUMMARY • Nine focus group interv
Page 140 and 141: RESULTS Eight key themes were ident
Page 142 and 143: 2e. Medical Interpretation There wa
Page 144 and 145: “I think I am nicer to a person w
Page 146 and 147: 6d. Generational differences Elders
Page 148 and 149: • The myths about the foetal diso
Page 150 and 151: SUMMARY • Vitiligo is a condition
Page 152 and 153: identified themselves as South Asia
Page 154 and 155: “…my parents would have been de
Page 156 and 157: 2a. Appearance shame and disgust Ma
Page 158 and 159: much…sometimes I just want to bec
Page 160 and 161: For respondents like AA (described
Page 162 and 163: study 6, that in addition to indivi
Page 164 and 165: AIMS The aims of this study were to
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Page 168 and 169: SUMMARY • Participants (n=38) too
Page 170 and 171: leaving 82 invitations not responde
Page 172 and 173: The vignettes alternated between de
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Page 176 and 177: SUMMARY • The study involved the
Page 178 and 179: METHOD Participants Student sample
Page 180 and 181: Clinic attendees On the anxiety sub
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Page 184 and 185: SUMMARY • Semi-structured intervi
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Seven key themes were identified an
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“I've heard tell that a lot of pe
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4. Physical adaptation From so smal
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6. Emotional impact & Emotional sup
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182
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SUMMARY • This study investigates
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Table 12.1 Demographic data by grou
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variance in anxious mood was accoun
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appearance of younger people (Harri
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SUMMARY • This study is recruitin
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METHOD Participants GPs from across
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196
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The results of each study have been
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Others expressed dissatisfaction wi
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Age Gender Ethnicity Relationship s
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Whilst the main thrust of this rese
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a strong evidence base in other are
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Nurses in a counseling role, clinic
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210
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This series of studies represents t
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214
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Ben-Tovim, D.I. and Walker, M.K. (1
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Crocker, J., Voelkl, K., Testa, M.
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Greenberg, L. S. and Safran, J. D.
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Macgregor, F., Abel, T.M., Brut, A.
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Pollard, L., Choy, E.H. and Scott,
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Scheier, M.F., Carver, C.S. and Bri
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Wright, G.E., Parker, J.C., Smarr,
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