Download the report - The Healing Foundation

Recommendations

Info

much…sometimes I just want to because it’s so much effort putting on my make up…” (AA) “I would end up feeling really self-conscious and, and nervous and scared and vulnerable and, it's all because I haven't got make-up on”. (AA) 3b. Confronting and explaining Some of the participants had developed positive methods of dealing with intrusive reactions, but such coping mechanisms were not widely evident in the group: “I would get the occasional like name calls… they're just saying it because they're scared of stuff that they don't know, because if you just explain it to them they've got nothing to say…” (AA) “Control new interaction by informing them beforehand.” (DD) 3c. Overcompensation For some participants there was a sense of overcompensating or using placation as a means of mitigating against anticipated rejection: “…it's really important to me what people think about me and because of that wanting to prove myself all the time I do go out of my way for other people, even at work if somebody says can you do this for me I won’t ever say no. It's like you’ve always got this want in you for people to like you because people have hated you most or your life or looked down their nose at you…” (GG) 3d. Finding their own way Some participants spoke of rejecting cultural practices and finding their own way. This was particularly evident in relation to arranged marriage: “…in my mind that made me think well what am I going to do and then I decided I wasn’t going to do it and I was going to go to university instead…because me and my husband had a love marriage…” (GG) 3e. Denial, wishful thinking and minimizing Some of the more distressed participants described using a range of emotional coping strategies likely to exacerbate their adjustment in the long run: 146
Denial and wishful thinking “…there'll be a magic cure and it will be over…” (BB) “…I feel in denial of it, I just think, I just want to fight it psychologically and not think about it really…” (BB) Minimizing emotion Not disclosing the condition or the individual impact of it to wider family was reported by several participants as a way of coping, either from the fear of causing worry within the family or the fear of being stigmatized; “…I just don't want to worry them because they'll just worry for me and that is the reason why I haven't told them…” (BB) 4. Social support Support came from family, friends, The Vitiligo Society, the Internet, and from dermatologists. 4a. Seeing things differently and acceptance For some, there was acceptance and assistance in generating positive illness representations: “…my husband has been brilliant and he just said, it wasn't, you know, it wasn't your own fault, it's just happened…” (BB) “…she's [a friend] so understanding, she said, you'll be you no matter what, so don't think about that because people accept you for what you are and if they don't accept you for what you are then, are they a true friend and don't worry about it.” (BB) “I've got this friend at work and she's amazing…she goes if that were me, if I was going to meet somebody I'd say you either take me as you are or you leave me. This is me accept it or lump it, but I can't do that.” (GG) 147
Page 1:
Identifying the psychosocial factor
Page 4 and 5:
Follow-on Studies: Emma Halliwell,
Page 6 and 7:
Warwick Site (Lead: Dr. Rodger Char
Page 8 and 9:
SECTION 3 Page OVERALL SYNTHESIS OF
Page 10 and 11:
Study 3 3.1 Response rates for resp
Page 13 and 14:
Introduction EXECUTIVE SUMMARY This
Page 15 and 16:
The Impact of Appearance-Related Di
Page 17:
Research Further investigation shou
Page 20 and 21:
Participants were recruited from ho
Page 23 and 24:
BACKGROUND & RATIONALE FOR THE RESE
Page 25 and 26:
The challenge of developing compreh
Page 27 and 28:
STAGE ONE (Inputs/Predisposing Fact
Page 29 and 30:
In order to address the first aim o
Page 31 and 32:
Role of the advisory panel in the r
Page 33:
credit is due to Anjte Lindenmeyer,
Page 36 and 37:
INTRODUCTION The largest part of th
Page 38 and 39:
South West (via the Bristol site) a
Page 40 and 41:
INPUTS/ PREDISPOSING FACTORS Age Ge
Page 42 and 43:
Appearance-related processing Valen
Page 44 and 45:
Anger/hostility The Refined Aggress
Page 46 and 47:
RESULTS Due to the size of the data
Page 48 and 49:
Figure 4.1(b) Comparative box-and-w
Page 50 and 51:
Table 4.2 Correlation of quantitati
Page 52 and 53:
Table 5.1(c) Frequency of number of
Page 54 and 55:
Table 6.1(a) Frequency and percenta
Page 56 and 57:
Table 7.1 summarises the degree of
Page 58 and 59:
Figure 7.1(a): Scores on the DAS 24
Page 60 and 61:
10.1 Appearance-related Social Anxi
Page 62 and 63:
HADS Anxiety, and the relative magn
Page 64 and 65:
10.4 Aggression When entering the v
Page 66 and 67:
elatively small but statistically s
Page 68 and 69:
11. Clinic Specific Data In order t
Page 70 and 71:
Table 11.3: Percentage of participa
Page 72 and 73:
anxiety was in the low to mild rang
Page 74 and 75:
Visibility and areas of concern The
Page 76 and 77:
affect and 46% for both anxiety and
Page 78 and 79:
likely they are to have difficultie
Page 80 and 81:
Information Attention Encoding/Stor
Page 82 and 83:
such as shame, were omitted. Where
Page 84 and 85:
RATIONALE In an attempt to offer pa
Page 86 and 87:
FINDINGS Theme I. Descriptive Accou
Page 88 and 89:
easts made her ‘flat chested’ a
Page 90 and 91:
confidence to other people’s reac
Page 92 and 93:
them noticing: ‘I try to hide my
Page 94 and 95:
5.) Time Structures What was striki
Page 97 and 98:
STUDY 3 LONGITUDINAL QUANTITATIVE S
Page 99 and 100:
Table 3.1 Response rates for respon
Page 101 and 102:
Table 3.4 Regression Model for DAS2
Page 103 and 104:
Table 3.6 Regression Model for Depr
Page 105 and 106:
Table 3.8 Regression Model for Posi
Page 107 and 108: 0.016), and optimism (r = -0.183, n
Page 109: and follow up). However, focusing o
Page 112 and 113: SUMMARY • Twenty-six participants
Page 114 and 115: There were ten well adjusted stable
Page 116 and 117: Stage 1 - predisposing factors - ch
Page 118 and 119: Appearance schema - beliefs about o
Page 120 and 121: “I’m in charge ...I think that
Page 122 and 123: “Only when people don’t underst
Page 124 and 125: appearance anxiety and coping with
Page 126 and 127: 114
Page 128 and 129: 116
Page 130 and 131: SUMMARY • This study aimed to exp
Page 132 and 133: A focus group methodology was chose
Page 134 and 135: any situation. Strategies involved
Page 136 and 137: CONCLUSIONS Whereas previous resear
Page 138 and 139: SUMMARY • Nine focus group interv
Page 140 and 141: RESULTS Eight key themes were ident
Page 142 and 143: 2e. Medical Interpretation There wa
Page 144 and 145: “I think I am nicer to a person w
Page 146 and 147: 6d. Generational differences Elders
Page 148 and 149: • The myths about the foetal diso
Page 150 and 151: SUMMARY • Vitiligo is a condition
Page 152 and 153: identified themselves as South Asia
Page 154 and 155: “…my parents would have been de
Page 156 and 157: 2a. Appearance shame and disgust Ma
Page 160 and 161: For respondents like AA (described
Page 162 and 163: study 6, that in addition to indivi
Page 164 and 165: AIMS The aims of this study were to
Page 166 and 167: 154
Page 168 and 169: SUMMARY • Participants (n=38) too
Page 170 and 171: leaving 82 invitations not responde
Page 172 and 173: The vignettes alternated between de
Page 174 and 175: 162
Page 176 and 177: SUMMARY • The study involved the
Page 178 and 179: METHOD Participants Student sample
Page 180 and 181: Clinic attendees On the anxiety sub
Page 182 and 183: 170
Page 184 and 185: SUMMARY • Semi-structured intervi
Page 186 and 187: Seven key themes were identified an
Page 188 and 189: “I've heard tell that a lot of pe
Page 190 and 191: 4. Physical adaptation From so smal
Page 192 and 193: 6. Emotional impact & Emotional sup
Page 194 and 195: 182
Page 196 and 197: SUMMARY • This study investigates
Page 198 and 199: Table 12.1 Demographic data by grou
Page 200 and 201: variance in anxious mood was accoun
Page 202 and 203: appearance of younger people (Harri
Page 204 and 205: SUMMARY • This study is recruitin
Page 206 and 207: METHOD Participants GPs from across
Page 208 and 209:
196
Page 210 and 211:
The results of each study have been
Page 212 and 213:
Others expressed dissatisfaction wi
Page 214 and 215:
Age Gender Ethnicity Relationship s
Page 216 and 217:
Whilst the main thrust of this rese
Page 218 and 219:
a strong evidence base in other are
Page 220 and 221:
Nurses in a counseling role, clinic
Page 222 and 223:
210
Page 224 and 225:
This series of studies represents t
Page 226 and 227:
214
Page 228 and 229:
Ben-Tovim, D.I. and Walker, M.K. (1
Page 230 and 231:
Crocker, J., Voelkl, K., Testa, M.
Page 232 and 233:
Greenberg, L. S. and Safran, J. D.
Page 234 and 235:
Macgregor, F., Abel, T.M., Brut, A.
Page 236 and 237:
Pollard, L., Choy, E.H. and Scott,
Page 238 and 239:
Scheier, M.F., Carver, C.S. and Bri
Page 240 and 241:
Wright, G.E., Parker, J.C., Smarr,
show all

Download the report - The Healing Foundation

You also want an ePaper? Increase the reach of your titles

Delete template?

Save as template?