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Pollard, L., Choy, E.H. and Scott, D.L. (2005). The consequences of rheumatoid arthritis: Quality of life measures in the individual patient. Clinical and Experimental Rheumatology, 23, S.43-S.52. Popovic, M. (2005). Intimacy and its relevance in human functioning. Sexual and Relationship Therapy, 2, 31-49. Porter, J. R. and Beuf, A. H. (1991). Racial variation in reaction to physical stigma: a study of degree of disturbance by vitiligo among black and white patients. Journal of Health and Social Behavior, 32, 192-204. Porter, J.R., Beuf, A.H., Lerner, A. and Nordlund, J. (1990). The effects of vitiligo on sexual relationships. Journal of American Academy of Dermatology, 22, 221-2. Ramsey, B., and O’ Reagan, M. (1988). A survey of the social and psychological effects of psoriasis. British Journal of Dermatology, 118, 195-201. Raskin, R., and Terry, H. (1988) A principal-component analysis of the narcissistic personality inventory and further evidence of its construct validity. Journal of Personality and Social Psychology, 54, 5. Roberts, L.J., Salem, D., Rappaport, J., Toro, P. A., Luke, D. A. and Seidman, E. (1999). Giving and receiving help: interpersonal transactions in mutual-help meetings and psychosocial adjustment of members. American Journal of Community Psychology, 27, 841–8. Robinson, E. (1997). Psychological research on visible differences in adults, in R. Lansdown, N. Rumsey, E. Bradbury, T. Carr, and J. Partridge. (eds). Visibly Different: Coping with Disfigurement. London: Butterworth Heinemann. Robinson, E., Rumsey, N. and Partridge, J. (1996). An evaluation of the social skills interaction skills workshops for people with disfiguring conditions. British Journal of Plastic Surgery, 49: 281-9. Rosenberg, M. (1965). Society and the Adolscent Self-Image. New Jersey: Princeton University Press. Rosser, B. (2008). Cognitive Information Processing Biases and Appearance Adjustment: The Role of the Appearance Self-Schema. Unpublished PhD Thesis, University of the West of England. Rozario, S. (2007) Growing up and living with neurofibromatosis1 (NF1): A British Bangladeshi case-study. Journal of Genetic Counselling, 16, 551-9. 224
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Identifying the psychosocial factor
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Follow-on Studies: Emma Halliwell,
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Warwick Site (Lead: Dr. Rodger Char
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SECTION 3 Page OVERALL SYNTHESIS OF
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Study 3 3.1 Response rates for resp
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Introduction EXECUTIVE SUMMARY This
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The Impact of Appearance-Related Di
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Research Further investigation shou
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Participants were recruited from ho
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BACKGROUND & RATIONALE FOR THE RESE
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The challenge of developing compreh
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STAGE ONE (Inputs/Predisposing Fact
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In order to address the first aim o
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Role of the advisory panel in the r
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credit is due to Anjte Lindenmeyer,
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INTRODUCTION The largest part of th
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South West (via the Bristol site) a
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INPUTS/ PREDISPOSING FACTORS Age Ge
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Appearance-related processing Valen
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Anger/hostility The Refined Aggress
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RESULTS Due to the size of the data
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Figure 4.1(b) Comparative box-and-w
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Table 4.2 Correlation of quantitati
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Table 5.1(c) Frequency of number of
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Table 6.1(a) Frequency and percenta
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Table 7.1 summarises the degree of
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Figure 7.1(a): Scores on the DAS 24
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10.1 Appearance-related Social Anxi
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HADS Anxiety, and the relative magn
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10.4 Aggression When entering the v
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elatively small but statistically s
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11. Clinic Specific Data In order t
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Table 11.3: Percentage of participa
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anxiety was in the low to mild rang
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Visibility and areas of concern The
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affect and 46% for both anxiety and
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likely they are to have difficultie
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Information Attention Encoding/Stor
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such as shame, were omitted. Where
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RATIONALE In an attempt to offer pa
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FINDINGS Theme I. Descriptive Accou
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easts made her ‘flat chested’ a
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confidence to other people’s reac
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them noticing: ‘I try to hide my
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5.) Time Structures What was striki
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STUDY 3 LONGITUDINAL QUANTITATIVE S
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Table 3.1 Response rates for respon
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Table 3.4 Regression Model for DAS2
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Table 3.6 Regression Model for Depr
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Table 3.8 Regression Model for Posi
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0.016), and optimism (r = -0.183, n
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and follow up). However, focusing o
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SUMMARY • Twenty-six participants
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There were ten well adjusted stable
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Stage 1 - predisposing factors - ch
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Appearance schema - beliefs about o
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“I’m in charge ...I think that
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“Only when people don’t underst
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appearance anxiety and coping with
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114
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116
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SUMMARY • This study aimed to exp
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A focus group methodology was chose
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any situation. Strategies involved
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CONCLUSIONS Whereas previous resear
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SUMMARY • Nine focus group interv
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RESULTS Eight key themes were ident
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2e. Medical Interpretation There wa
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“I think I am nicer to a person w
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6d. Generational differences Elders
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• The myths about the foetal diso
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SUMMARY • Vitiligo is a condition
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identified themselves as South Asia
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“…my parents would have been de
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2a. Appearance shame and disgust Ma
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much…sometimes I just want to bec
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For respondents like AA (described
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study 6, that in addition to indivi
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AIMS The aims of this study were to
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154
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SUMMARY • Participants (n=38) too
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leaving 82 invitations not responde
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The vignettes alternated between de
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162
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SUMMARY • The study involved the
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METHOD Participants Student sample
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Clinic attendees On the anxiety sub
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170
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SUMMARY • Semi-structured intervi
Page 186 and 187: Seven key themes were identified an
Page 188 and 189: “I've heard tell that a lot of pe
Page 190 and 191: 4. Physical adaptation From so smal
Page 192 and 193: 6. Emotional impact & Emotional sup
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Page 196 and 197: SUMMARY • This study investigates
Page 198 and 199: Table 12.1 Demographic data by grou
Page 200 and 201: variance in anxious mood was accoun
Page 202 and 203: appearance of younger people (Harri
Page 204 and 205: SUMMARY • This study is recruitin
Page 206 and 207: METHOD Participants GPs from across
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Page 210 and 211: The results of each study have been
Page 212 and 213: Others expressed dissatisfaction wi
Page 214 and 215: Age Gender Ethnicity Relationship s
Page 216 and 217: Whilst the main thrust of this rese
Page 218 and 219: a strong evidence base in other are
Page 220 and 221: Nurses in a counseling role, clinic
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Page 224 and 225: This series of studies represents t
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Page 228 and 229: Ben-Tovim, D.I. and Walker, M.K. (1
Page 230 and 231: Crocker, J., Voelkl, K., Testa, M.
Page 232 and 233: Greenberg, L. S. and Safran, J. D.
Page 234 and 235: Macgregor, F., Abel, T.M., Brut, A.
Page 238 and 239: Scheier, M.F., Carver, C.S. and Bri
Page 240 and 241: Wright, G.E., Parker, J.C., Smarr,
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