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Download the report - The Healing Foundation

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Several studies, however, have highlighted <strong>the</strong> importance of subjective assessments of<br />

severity. Moss (2004) and Rumsey et al (2004) found a linear relationship between subjectively<br />

assessed severity of appearance and adjustment, highlighting <strong>the</strong> importance of personal<br />

evaluation of a problem. Our results showed a striking relationship between increasing<br />

numbers of areas of concern and growing levels of distress, particularly in relation to social<br />

anxiety and social avoidance around appearance (DAS24). Participants in <strong>the</strong> community were<br />

more likely to <strong>report</strong> multiple areas of concern than those recruited in hospital settings, and<br />

women had greater numbers of areas of concern than men.<br />

Only 25.7% of <strong>the</strong> sample <strong>report</strong>ed being concerned about only one area. It is important to note<br />

that people with a disfiguring condition affecting one body part may also have significant<br />

appearance concerns about o<strong>the</strong>r aspects of appearance. Twenty seven percent <strong>report</strong>ed<br />

concern about <strong>the</strong>ir abdomens, 22% in relation to <strong>the</strong> appearance of <strong>the</strong>ir thighs & 14% re<br />

buttocks. <strong>The</strong>se results may reflect concerns about weight, and it is possible that <strong>the</strong>se worries<br />

may over-ride issues about a disfiguring condition. Weight related concerns were greater in <strong>the</strong><br />

community sample. <strong>The</strong> prevalence of weight concerns in <strong>the</strong> general population comes as no<br />

surprise in <strong>the</strong> current context of rising levels of obesity. However, more research is needed to<br />

unpick <strong>the</strong> similarities and differences in <strong>the</strong> different types of concern.<br />

<strong>The</strong> multivariate nature of adjustment<br />

<strong>The</strong> measures chosen as <strong>the</strong> outcomes in our conceptual framework were significantly<br />

correlated, supporting <strong>the</strong> view that adjustment is multi-factorial (see for example, Rumsey et al,<br />

2004; Rumsey and Harcourt, 2005). <strong>The</strong> psychological characteristics of those who were<br />

positively adjusted included higher levels of optimism, greater feelings of social acceptance and<br />

satisfaction with social support, a lack of concern about negative evaluations by o<strong>the</strong>rs, and a<br />

self-system with lower levels of salience and valence afforded to appearance-related<br />

information. Levels of social anxiety and social avoidance were low, as were levels of negative<br />

affect, general anxiety and depression. <strong>The</strong>se people felt <strong>the</strong>ir disfigurement was reasonably<br />

easy to disguise, and tended to be older than people with higher levels of distress.<br />

An identical regression model was used to interrogate <strong>the</strong> data for each outcome variable. In<br />

relation to social anxiety and social avoidance, an impressive 66.2% of <strong>the</strong> variance was<br />

explained by <strong>the</strong> model. This was anticipated, as <strong>the</strong> measure in question (<strong>the</strong> DAS24) is<br />

designed specifically to assess levels of distress in people with disfigurements. In this<br />

regression model, <strong>the</strong>re were no effects of living status, method of recruitment, or of<br />

appearance-related social comparisons. <strong>The</strong>re was a small gender effect, with women more<br />

distressed than men, and strong negative effects of age (older people were less distressed),<br />

optimism and social acceptance. As levels of fear of negative evaluation, salience and valence<br />

increased, so did distress.<br />

Similar pictures emerged when applying <strong>the</strong> regression model to <strong>the</strong> o<strong>the</strong>r outcome measures.<br />

<strong>The</strong> model predicted approximately 30% of <strong>the</strong> variance for positive affect, 45% for negative<br />

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