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Download the report - The Healing Foundation

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SUMMARY<br />

• Vitiligo is a condition that results in <strong>the</strong> visible loss of pigment or colour from <strong>the</strong> skin.<br />

• Seven in-depth interviews were conducted with British people of South Asian descent or<br />

family of origin living with <strong>the</strong> skin condition vitiligo.<br />

• <strong>The</strong> qualitative method of Template Analysis was used.<br />

• Participants described feeling visibly different and all had experienced stigmatization to<br />

some extent.<br />

• For many, cultural specific issues associated with status and practices such as arranged<br />

marriage were intimately related to both stigmatization and social support and<br />

consequently this influenced <strong>the</strong> individual impact of <strong>the</strong> condition and <strong>the</strong> way that this<br />

impact was managed.<br />

• <strong>The</strong>re was a range of distress described within <strong>the</strong> participant group and many of <strong>the</strong><br />

coping strategies used were not dissimilar to <strong>the</strong> strategies described by o<strong>the</strong>r<br />

populations. For example, concealment and avoidance were commonly described.<br />

• <strong>The</strong> findings of this study broadly support <strong>the</strong> model developed by ARC but highlight <strong>the</strong><br />

need to assess cultural associations of disfigurement. Fur<strong>the</strong>r, <strong>the</strong>y support <strong>the</strong><br />

conclusions of study 6 in suggesting that in addition to individual <strong>the</strong>rapeutic<br />

interventions <strong>the</strong>re may be a need for community interventions aimed at dispelling<br />

myths, and raising awareness of sources of support and treatment.<br />

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