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88<br />

Inclusive Communities = Stronger Communities<br />

GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY<br />

they will open their first apartment for people with<br />

significant physical disabilities as well as intellectual<br />

disabilities, demonstrating for their government and<br />

for the region that all people can be included in their<br />

communities. They even made a movie showing how<br />

people who had been institutionalized, now living in<br />

the community, could enjoy a full life, including<br />

getting married! 9<br />

In Bahrain a young self-advocate said this in response<br />

to the question, how can life be better for people with<br />

intellectual disabilities? “There are some facilities for<br />

children with special needs and support for them, but<br />

eventually children grow up and there is nothing for<br />

adults.” This is true in many places. Schooling is a<br />

common frame of reference for all families, and<br />

service for the population at large. There is not a<br />

framework for how best to support adults with<br />

intellectual disabilities living with their families<br />

anywhere we surveyed. Person and family centered<br />

planning and attention to the needs of the entire<br />

family as well as the family member with intellectual<br />

disabilities must be considered. Not one or the other,<br />

but both.<br />

In New Zealand the last of their public institutions,<br />

the Kimberley Centre, was closed in 2006. The array<br />

of services and supports there shows that everyone,<br />

regardless of their level and type of disability, can be<br />

supported in community environments. Strong<br />

advocacy by families and people with intellectual<br />

disabilities themselves helped create the political will<br />

to close the institutions and to create a community<br />

system of services and supports. While much has<br />

been done, much remains. One father said, “While my<br />

daughter is living in the community, she is not yet a<br />

fully participating member of her community ... but<br />

we are making progress.”

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