Global-Report-Living-Colour-dr2-2

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Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY 111 ‰ Deinstitutionalization is more than closure Perhaps the first and most important lesson learned is that deinstitutionalization is not just about closing institutions – not just about the evacuation of people from one environment to another. We have learned that deinstitutionalization involves assisting people to leave institutions and take their rightful place in community and also that it involves the development and provision of appropriate and adequate community and family based supports and services for both those leaving the facility as well as for those persons who are currently living in community. We have learned from past efforts that deinstitutionalization must be as much about supporting people to continue to live in the community (e.g. prevention) as it is about closing facilities. To do otherwise simply means that over time persons leaving the facility will be replaced by others from the community who cannot access needed supports to continue to live in community. AUSTRALIA Not explicitly, but through funding people are hindered from living in the community. JAPAN There have been initiatives in Japan, but at the same time we have the fact that the number of institutions is growing. From the research only 3.4% has been deinstitutionalized and two of the main new placements are their homes and group homes. We have to add another fact that almost the same number of people are newly institutionalized. ‰ Everyone can live and be included in the community Another major lesson learned is that all people living in institutions can live more successful and inclusive lives in community. We have learned that community living is for all people – not just those who have less significant challenges. Experience in countries such as the UK, Canada, USA, New Zealand, Norway and Sweden have demonstrated beyond doubt or debate that institutions do not need to exist (or continue to exist) to serve the needs of certain groups of people. Research from numerous institutional closures have unequivocally demonstrated that persons with “severe” disabilities, those with challenging behaviors, people who are “medically fragile”, and persons of advanced age (who have lived in the institution for many years) can all be successfully supported in community. LESOTHO “We believe that people with disabilities should not be kept in institutions, since it’s like treating them like animals, where their minds are restricted. They have the right to be part of their families and siblings. Families and communities should learn how to take care of them”
112 Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY We are now aware that the many of the limitations usually associated with disability are as much related to the surrounding environment and rules of society as they are to the individual. We know that people, regardless of type or extent of disability, do not need to live in institutions. Most importantly, we know that people flourish and thrive when they live in the community, with appropriate support. We have learned that efforts to assist people to leave institutions must be guided by those values and principles that are known to achieve positive outcomes. A deinstitutionalization plan must ensure that people have: • The right to choose where they will live, and with whom • Services/programmes that are person centered, directed and controlled by the person and that are respectful of that person’s right to make choices and take risks, within the context of their culture • The right to individualized living arrangements and control over the needed resources Photo: Ulrich Eigner • The necessary disability related supports needed to fully participate in the community • Support, as necessary, from friends/family/advocates to assist in decision making (supported decision making) • Services that meet all of their needs and are of high quality, portable and accessible • Help in developing natural supports including families, neighbors, friends
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