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Inclusive Communities = Stronger Communities<br />

GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY<br />

111<br />

‰ Deinstitutionalization is more than closure<br />

Perhaps the first and most important lesson learned is<br />

that deinstitutionalization is not just about closing<br />

institutions – not just about the evacuation of people<br />

from one environment to another. We have learned<br />

that deinstitutionalization involves assisting people to<br />

leave institutions and take their rightful place in<br />

community and also that it involves the development<br />

and provision of appropriate and adequate<br />

community and family based supports and services<br />

for both those leaving the facility as well as for those<br />

persons who are currently living in community. We<br />

have learned from past efforts that<br />

deinstitutionalization must be as much about<br />

supporting people to continue to live in the<br />

community (e.g. prevention) as it is about closing<br />

facilities. To do otherwise simply means that over<br />

time persons leaving the facility will be replaced by<br />

others from the community who cannot access<br />

needed supports to continue to live in community.<br />

AUSTRALIA Not explicitly, but<br />

through funding people are hindered<br />

from living in the community.<br />

JAPAN There have been initiatives<br />

in Japan, but at the same time we<br />

have the fact that the number of<br />

institutions is growing. From the<br />

research only 3.4% has been<br />

deinstitutionalized and two of the<br />

main new placements are their homes<br />

and group homes. We have to add<br />

another fact that almost the same<br />

number of people are newly<br />

institutionalized.<br />

‰ Everyone can live and be included in the<br />

community<br />

Another major lesson learned is that all people living<br />

in institutions can live more successful and inclusive<br />

lives in community. We have learned that community<br />

living is for all people – not just those who have less<br />

significant challenges. Experience in countries such as<br />

the UK, Canada, USA, New Zealand, Norway and<br />

Sweden have demonstrated beyond doubt or debate<br />

that institutions do not need to exist (or continue to<br />

exist) to serve the needs of certain groups of people.<br />

Research from numerous institutional closures have<br />

unequivocally demonstrated that persons with<br />

“severe” disabilities, those with challenging behaviors,<br />

people who are “medically fragile”, and persons of<br />

advanced age (who have lived in the institution for<br />

many years) can all be successfully supported in<br />

community.<br />

LESOTHO “We believe that people with<br />

disabilities should not be kept in<br />

institutions, since it’s like treating them<br />

like animals, where their minds are<br />

restricted. They have the right to be part<br />

of their families and siblings. Families<br />

and communities should learn how to<br />

take care of them”

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