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Inclusive Communities = Stronger Communities<br />

GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY<br />

119<br />

moved to community options while those with more<br />

significant challenges were often relocated to other<br />

institutional settings such as nursing homes,<br />

rehabilitation centres or other similar long term care<br />

facilities.<br />

We know that deinstitutionalization is not a simple matter<br />

of closing a facility and moving residents to the<br />

community. To be successful and sustainable, the process<br />

must involve careful individual and systems level planning.<br />

Additional community based supports must often be<br />

created and/or expanded to support those returning to<br />

community as well as those who are already in community<br />

(usually with families). Adequate and appropriate support<br />

must be provided to both individuals and families. Full<br />

consideration must be given to ensuring that individuals<br />

become full and participating members of their<br />

community and not have simply exchanged one<br />

institutional setting for another that is merely different in<br />

size and location. Self-advocates from across the world<br />

have told us that life in community – inclusion in<br />

community – is possible only if it comes with the ability to<br />

make choices, take risks and have control.<br />

As countries complete their deinstitutionalization efforts,<br />

continue to close existing facilities and/or begin to<br />

consider the merits of initiating such a process, there are<br />

several emerging and ongoing challenges that must be<br />

addressed.<br />

‰ Other Institutional Settings<br />

Stories told to us by families and self-advocates,<br />

particularly in countries where traditional institutions<br />

specifically for people with intellectual disabilities<br />

have been closed reveal an increasing trend of using<br />

other institutional placements as an acceptable<br />

option. In countries such as Canada, the USA, Japan,<br />

New Zealand, Australia and the UK families and self<br />

AUSTRALIA There are a variety of<br />

lessons learned – eg. people<br />

invariably live better lives, families<br />

often resist the move, government<br />

commitment is influenced primarily<br />

driven by the cost, it is harder to<br />

develop individual alternatives than<br />

group ones (e.g. group homes).<br />

INDIA “Our students sometimes<br />

come from home with nothing: no<br />

school equipment or basic necessities.<br />

We are starting to keep chickens and<br />

grow vegetables so we can improve the<br />

children’s diet and help them stay<br />

healthy.”<br />

One young boy at the school adds: “I<br />

like to board at the school because<br />

there I have a bed with a proper<br />

mattress. We play with children from<br />

the mainstream classes at break<br />

times.” His friend, a young girl, adds:<br />

“I would even prefer to stay at<br />

weekends too.” Their parents reported<br />

being pleased that their children were<br />

now in school, where they are learning<br />

more than they were at home, and they<br />

do not have to travel so far each day.

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