Global-Report-Living-Colour-dr2-2

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Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY iii Table of Contents List of Tables and Figures . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .v List of Acronyms . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .vi Acknowledgments . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .viii Foreword . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .xi INTRODUCTION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .1 PART I: The Global Context......................................................................................................13 Chapter 1: About the Global Study.............................................................................................14 Chapter 2: People with Intellectual Disabilities, Families and Community; Understanding the Roles and Relationships .....................................................23 Chapter 3: Regional Perspectives ................................................................................................34 PART II: Our Vision of Inclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .43 Chapter 4: People with Intellectual Disabilities and Families Define What Living Independently and Being Included in the Community Means . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .44 PART III: Where Are We on the Road to Inclusion? . . . . . . . . . . . . . . . . . . . . .53 Chapter 5: Article 19 of the Convention on the Rights of Persons with Disabilities: Choice, Support, Inclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .55 Choice . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .57 Supports . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .67 Supports to the Individual . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .68 Supports to Families . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .80 Inclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .89 Chapter 6: Future Directions in Advancing a Framework for Inclusion in the Community . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .99 Chapter 7: Institutionalization: Ending the Cycle of Exclusion . . . . . . . . . . . . . . . . . .109
iv Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY PART IV: Achieving Inclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .123 Chapter 8: The Role of Family Based Organizations in Making Change and Promoting Inclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .124 CONCLUSION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .131 Appendices Appendix 1: List of Countries and Participants in the Global Study . . . . . . . . . . . . . . .140 Endnotes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .147 Bibliography . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .148
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