Global-Report-Living-Colour-dr2-2

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Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY 67 Supports 19(b) “Persons with disabilities have access to a range of in-home, residential and other community support services, including personal assistance necessary to support living and inclusion in the community, and to prevent isolation or segregation from the community;” The vast majority of people with intellectual disabilities around the world live at home with their families and the vast majority of those people who live at home do not receive the supports they need to live “independently” in the community, nor do their families receive the support they need to enable their family member to be included. While there is little reliable national census data to show Figure 2: Where do people with intellectual disabilities live. Country profiles survey.
68 Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY where people with intellectual disabilities live, one hundred percent of our members who responded to the country survey indicated that the vast majority of people with intellectual disabilities in their countries live at home with their families. While access to formal services for people with intellectual disabilities vary across regions and countries, the primary source of support that people with intellectual disabilities receive wherever they live in the world is from their families. Yet families consistently reported that they receive little or no assistance (financial support, services, information or planning support). This means we need to understand both the individual’s need for services and supports at home in the community but also we need to understand the needs of the family in fulfilling their role as caregivers, advocates and as the economic and social link to the community. Supports to the Individual For people with intellectual disabilities the kinds of supports and services which they need to function and participate in their communities vary greatly across cultures and regions and by the nature of support the individual wants and needs. For our purposes we refer to disability related services, financial assistance, information and planning provided or funded by governments as formal supports and unpaid assistance provided by families, neighbors, friends and others in the community as informal supports. Supports may be focused on the person with an intellectual disabilities, or on the family or both. They can include assistive devices and physical aids but more often they are assistance with personal care, support in education or employment, support in decision making or support in housekeeping, preparing meals or managing finances. The type and availability of services and supports
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