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Inclusive Communities = Stronger Communities<br />

GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY<br />

73<br />

‰ Disability supports and services tied to housing<br />

When a person with an intellectual disabilities decides<br />

that he/she would like to move out of their family<br />

home or when their family is no longer there<br />

to care for them, the residential options<br />

available to them are significantly limited by<br />

the fact that the supports and services which<br />

they need are only available in certain settings<br />

such as care homes (group homes, seniors<br />

homes etc.). Having access to services and<br />

supports which could be used in the<br />

residential setting of their choice would<br />

significantly change the way in which people<br />

are included in the community.<br />

‰ Access to inclusive services<br />

Families reported that even when they have the<br />

finacial resources (personal or funded by<br />

government) to purchase services, the range of<br />

appropriate and reliable services available is<br />

extremely limited. From a public policy perspective<br />

this may be a result of the fact that government<br />

funding is heavily weighted towards the supply-side<br />

and the service agencies have not been forced to be<br />

accountable to what people with intellectual<br />

disabilities and their families are demanding. For<br />

example, government funding to sheltered<br />

workshops, group homes and day programmes<br />

means that people with intellectual disabilities who<br />

would chose to work in the open labour market or to<br />

live on their own or volunteer in the community often<br />

cannot access the supports they require to do so.<br />

We learned that in many cases the lack of access to<br />

inclusive services stems from a misunderstanding of<br />

what “community based” should mean. Governments<br />

and those who deliver services believe that the<br />

location of services in the community in itself means<br />

inclusive services as is the example from a provincial<br />

government in Canada;<br />

CANADA “Across the province of<br />

Ontario, there are 23,000 people with<br />

a developmental disability languishing<br />

on waitlists for services – 12,000 of<br />

those individuals are waiting for<br />

residential supports. 44-year-old<br />

Hamilton resident, Akhil Agarwal, is one<br />

of them. His 70-year-old father, Naresh<br />

Agarwal, is worried that families like<br />

theirs have to go into crisis to get the<br />

supports and services they need.” 4

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