Global-Report-Living-Colour-dr2-2

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Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY 101 • To be empowered and supported to make decisions about their life and what they want • A positive vision about where and how they would like to live and what they would like to do • A voice that is heard, acknowledged and respected by others • Diverse options that complement their vision • Supports to make their decision a reality • Innovative and creative opportunities to be included in community Table 4: The Right to Decide: Issues and Future Direction Issue Guardianship and Substitute Decision Making Future Direction Investment in support networks, self-advocacy and supported decision-making mechanisms Legislative reforms to eliminate guardianship Culture of Substitute Decision Making Lack of Models and Infrastructure for Supported Decision Making Denial of the Right to Enter Contracts Development of self-advocacy networks and family based organizations to strengthen and enable people with intellectual disabilities to have their voices heard in their own lives and in the community Investment in pilot initiatives, model legislation and individualized supports to develop good practice in supported decision making Review of law and policy at the national level to remove restrictions in employment law, family law and other relevant legislation Establishment of mechanisms to enable recognition of supported-decision making in contracts
102 Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY Table 5: Where and With Whom: Issues and Future Direction Issue Families are the only source of support State sponsored residential options are segregated and institutional Daily living supports are attached to real estate Limited Vision of Options Safety and Violence Future Direction Investment in formal (state sponsored) and informal (friends, neighbors and community) supports for day to day living that are individualized and flexible Shift the focus of investments from group homes and “institutionally” operated housing to more individualized living arrangements which might include support to live at home with the family Disentangle other supports from the provision of housing Build and support family based organizations and selfadvocacy groups to enable sharing of experience and examples across communities, countries and internationally Educate people with disabilities about their rights Ensure access to justice by people with disabilities (Article 13 of the CRPD) Support Services and supports for people with intellectual disabilities and their families will vary with a country’s culture, history and tradition. There is no one “model” or way of doing things, however we do know from a half century of research and practice that institutional care is a model that does not and cannot work. The CRPD and especially Article 19, calls for people with intellectual disabilities and families to have the same access to services and the community as others in their society. It does not call for all services and supports to be of one type, or to all look alike. In the developed world challenges remain,
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