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132<br />

Inclusive Communities = Stronger Communities<br />

GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY<br />

Conclusion<br />

ACHIEVING THE RIGHT TO LIVE AND BE INCLUDED in<br />

the community for people with intellectual disabilities<br />

presents a multi-dimensional and complex challenge for a<br />

range of actors including families, educators, employers,<br />

community stakeholders, governments and people with<br />

intellectual disabilities themselves. If we examine the key<br />

findings from consultations with self-advocates and<br />

families, what emerges is a roadmap for public policy<br />

which will lead the process for change in our communities.<br />

Key Findings and Policy Recommendations:<br />

‰ The majority of people with intellectual<br />

disabilities have no voice or control in the<br />

decisions about where and with whom they live.<br />

Recognition of the right of each person to make<br />

decisions about their own lives will require change in<br />

legislation, societal attitudes and the role of families.<br />

It is tempting to assume that legislative reform alone<br />

will achieve this shift. However, to ensure that real<br />

change happens in people’s lives, several other<br />

important investments need to be made. First,<br />

families and people with intellectual disabilities need<br />

support to develop personal support networks in<br />

their daily lives which will enable adults with<br />

intellectual disabilities to express their voice and<br />

exercise control in their lives. This support can be<br />

developed through investment in self-advocacy and<br />

support to family based organizations and training for<br />

families. Second, supported decision making<br />

structures and processes need to be developed. While<br />

some models of supported decision making are being<br />

tested in different jurisdictions, there are only a few<br />

examples internationally of these models being<br />

recognized in law.

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