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Inclusive Communities = Stronger Communities<br />

GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY<br />

47<br />

A Family Perspective: Imagining a Better<br />

Future<br />

Families who participated in the focus groups and regional<br />

forums told us their stories of the struggle to support their<br />

family member. The idea of a better future and inclusion in<br />

the community inspired both hope and fear. When asked<br />

to describe what inclusion in the community might look<br />

like for their family member, families talked about having<br />

their sons and daughters respected, valued and supported.<br />

They talked about the family member going to school,<br />

being able to play with other children, participating in<br />

religious groups and having neighbors who<br />

accepted and supported their family<br />

member. Even as they imagined a better<br />

future, the hope was always tinged with fear<br />

– fear for the safety of their family member,<br />

fear for the future when they would no<br />

longer be there to provide care and support.<br />

In Chile, we were told “This initiative seems<br />

excellent to me because it will help us<br />

understand [that] although sometimes we<br />

think we are far from the goal, [this is] not a<br />

tragedy, the tragedy is if we lose hope in<br />

change and when we get discouraged by<br />

what we lack to reach the goal. Those who<br />

say this is IMPOSSIBLE, stray from the path of<br />

which people, as you and I, have undertaken,<br />

the path of change!”<br />

In our regional forums families defined community as a<br />

place where you belong; a place where family, friends and<br />

neighbors enjoy life together; where people support one<br />

another. <strong>Living</strong> and being included in the community<br />

means having friends and living a typical life. Participants<br />

also recognized the challenges and fears about living in<br />

the community. Often communities are not very<br />

welcoming or accepting. A participant expressed

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