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78<br />

Inclusive Communities = Stronger Communities<br />

GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY<br />

NICARAGUA Most sector<br />

organizations work with people with<br />

physical and sensory disability,<br />

although there are initiatives from<br />

small local organizations that develop<br />

specific activities with small groups of<br />

young people with intellectual<br />

disabilities. It is noteworthy that these<br />

actions, while remaining positive, have<br />

in most cases a special focus, as they<br />

become special centers only for people<br />

with intellectual disabilities that provide<br />

a free service for a period of 3-5 hours.<br />

BOLIVIA Many parents are<br />

demanding the creation of institutions<br />

for placing their children with severe<br />

intellectual disabilities, because they<br />

have limited access to rehabilitation<br />

services and information that provide<br />

adequate support within the family<br />

and community. Rehabilitation<br />

institutions are located in intermediate<br />

cities, so there is a need to do<br />

boarding to children out of town, but<br />

their capacity was exceeded largely<br />

because of high demand.<br />

work on projects to raise money to support their<br />

organization. With no residential institutions to speak<br />

of and with strong family networks, these families all<br />

wanted their sons and daughters to have something<br />

meaningful to do during the day other than to just be<br />

at home. The families that we spoke to could not<br />

conceive of adults who are not married living away<br />

from their families. This was an entirely foreign concept<br />

for them. For people with intellectual disabilities and<br />

families day supports serve two purposes; providing<br />

activities and socialization for the adult with intellectual<br />

disabilities and giving the family the ability to work and<br />

to take care of other people in the household.<br />

However, creating day programmes takes the emphasis<br />

away from working and contributing to society through<br />

labour or through entrepreneurship. As with<br />

institutions we have learned that day centres and<br />

sheltered workshops are best avoided. They may<br />

provide respite for families but actually interfere with<br />

including people in their communities. In economies<br />

where many people cannot find work, extraordinary<br />

efforts are needed to support people with intellectual<br />

disabilities in securing and maintaining productive<br />

work. While it is tempting to develop day centres,<br />

experience shows that people stay in them for a<br />

lifetime and they do not lead to inclusion in the<br />

community. In fact, quite to the contrary, they are<br />

isolating and stigmatizing.<br />

From the MENA region we heard, “Since the political<br />

problems started in the region (and this goes back to<br />

right after the Second World War), we have witnessed<br />

more and more violations to the human rights<br />

understanding. In Palestine for instance, children were<br />

denied education and the only way they could access<br />

education was through United Nations Relief and<br />

Works Agency for Palestine Refugees in the Near East<br />

(UNRWA). The agency's main focus was not only<br />

education but health and social assistance as well.

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