Global-Report-Living-Colour-dr2-2

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Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY 19 How the Information was Collected We deliberately developed multiple strategies for contributing to the report as we knew that limitations in time and human and fiscal resources, numerous languages, and geographical hurdles were just a few of the challenges that would be faced in the efforts to gather information for this report. In some countries, focus groups and events were held. In others, focused efforts were tacked on to existing events to take advantage of a group of people already gathered. Regional coordinators in each region helped initiate data collection and contact with families and people with intellectual disabilities at a local level. We invited our national member organizations, allies, families, people with intellectual disabilities and partners to contribute to the research through: ‰ Focus Groups – We asked organizations and individuals to host discussions with families and people with intellectual disabilities to share their perspectives on what their lives are like, where they are living and whether or not they want something different. ‰ Country Survey – Available online and in hard copy, the survey was designed to collect national-level demographic data (where possible and available) and to help provide a snap shot of key issues, challenges and successes in achieving inclusion in the community. ‰ Pilot Initiatives – We worked directly with some countries to address particular issues they identified as barriers to living and being included in the community. These initiatives include developing alternatives to institutional care for children with disabilities in Colombia, developing community supports in Kenya, and supporting our member in Israel, AKIM, to explore the transformation of
20 Inclusive Communities = Stronger Communities GLOBAL REPORT ON ARTICLE 19: THE RIGHT TO LIVE AND BE INCLUDED IN THE COMMUNITY supports and services to be more inclusive and community oriented. ‰ Sharing stories – We asked people with intellectual disabilities and families to share their personal stories with us. Through the submission of stories, both written and oral, poems, pictures and videos, people showed us and told us about their lives. ‰ Regional Forums – II hosted five (5) Regional Capacity Building Forums – Americas, Bogotá, Colombia, November 2010; Africa, Johannesburg, South Africa, March 2011; Europe, Peniche, Portugal, October 2011; Asia Pacific, Kathmandu, Nepal, November 2011; MENA, Amman, Jordan, March 2011 – and three (3) strategic regional meetings – Mexico City, Mexico, February 2012; Nairobi, Kenya, March 2012; Brussels, Belgium, May 2012. Specific tools and resources were developed to assist our members and partners to participate in the process. Presentations on both the Campaign and on Article 19 were made available online in English and translated into Arabic, Japanese, French and Spanish to be regionally and locally relevant 3 . Regional capacity building forums, regional strategy meetings and focus groups provided an opportunity to hear from families and people with intellectual disabilities about issues that were specific to each region of the world. The process of having people meet and share their experiences provided both important input for the report and opportunities for people to develop strategies to build inclusive communities. In Bolivia we heard, “ This initiative helps to illustrate many of the protests led by families and civil society organizations over the years, in order to acknowledge and gain the rights of people with intellectual disabilities, in this case, the right to live in community. When trying to contribute to the report we realize the limited written
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