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State of the World's Children 2013 - Unicef

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FOCUS<br />

Lessons learned<br />

Since 1995, UNICEF has supported<br />

countries in tracking<br />

progress in key areas <strong>of</strong> children’s<br />

and women’s wellbeing<br />

through <strong>the</strong> Multiple<br />

Indicator Cluster Surveys<br />

(MICS). These nationally<br />

representative household<br />

surveys have been conducted<br />

in more than 100 low- and<br />

middle-income countries, and<br />

some have included a module<br />

designed to screen child disability.<br />

This information is now<br />

being built upon to design an<br />

improved measurement tool<br />

to assess child disability.<br />

Disability became part <strong>of</strong> <strong>the</strong><br />

MICS questionnaires in 2000–<br />

2001 (MICS2). Since <strong>the</strong>n, data<br />

on disability have been collected<br />

through more than 50<br />

surveys, making <strong>the</strong> MICS <strong>the</strong><br />

largest source <strong>of</strong> comparable<br />

data on child disability in lowand<br />

middle-income countries.<br />

The standard disability module<br />

included in MICS surveys<br />

conducted between 2000 and<br />

2010 is <strong>the</strong> Ten Questions<br />

Screen (TQ), which was<br />

developed as part <strong>of</strong> <strong>the</strong><br />

International Pilot Study <strong>of</strong><br />

Severe Childhood Disability in<br />

1984. Its design reflects how<br />

disability was understood and<br />

measured at <strong>the</strong> time.<br />

The TQ process starts with<br />

an interview with <strong>the</strong> primary<br />

caregivers <strong>of</strong> children aged<br />

2–9 years, who are asked to<br />

provide a personal assessment<br />

<strong>of</strong> <strong>the</strong> physical and mental<br />

development and functioning<br />

<strong>of</strong> <strong>the</strong> children under <strong>the</strong>ir care.<br />

Questions include whe<strong>the</strong>r <strong>the</strong><br />

child appears to have difficulty<br />

hearing; whe<strong>the</strong>r she or he<br />

seems to understand instructions,<br />

has fits or loses consciousness;<br />

and whe<strong>the</strong>r she<br />

or he was delayed in sitting,<br />

standing or walking compared<br />

to o<strong>the</strong>r children. Response categories<br />

do not accommodate<br />

nuances, and children are classified<br />

as screening positive or<br />

negative to each question.<br />

The validity <strong>of</strong> <strong>the</strong> Ten<br />

Questions approach has been<br />

widely tested, but results must<br />

be interpreted with caution.<br />

The TQ is a screening tool, and<br />

requires follow-up medical and<br />

developmental assessment in<br />

order to yield a reliable estimate<br />

<strong>of</strong> <strong>the</strong> number <strong>of</strong> children<br />

in a given population who have<br />

disabilities. <strong>Children</strong> who have<br />

a serious disability are very<br />

likely to screen positive, but<br />

some who screen positive may<br />

be found to have no disability<br />

on fur<strong>the</strong>r evaluation. Some<br />

children who screen positive<br />

may do so because <strong>of</strong> temporary<br />

health conditions that can<br />

be easily treated. Although <strong>the</strong><br />

TQ comes with a recommendation<br />

that it be followed by an<br />

in-depth assessment, few countries<br />

have had <strong>the</strong> budgets or<br />

capacity to conduct <strong>the</strong> secondstage<br />

clinical assessment to<br />

validate results, and <strong>the</strong>y have<br />

been fur<strong>the</strong>r hampered by <strong>the</strong><br />

lack <strong>of</strong> a standardized methodology<br />

for conducting <strong>the</strong><br />

assessment.<br />

Applying <strong>the</strong> Ten Questions<br />

Screen during <strong>the</strong> 2005–2006<br />

MICS yielded a wide range<br />

<strong>of</strong> results across participating<br />

countries: The percentage <strong>of</strong><br />

children who screened positive<br />

for disability ranged from<br />

3 per cent in Uzbekistan to 48<br />

per cent in <strong>the</strong> Central African<br />

Republic. It was not clear<br />

whe<strong>the</strong>r this variance reflected<br />

true differences among <strong>the</strong><br />

populations sampled or additional<br />

factors. For instance, <strong>the</strong><br />

low reported rate in Uzbekistan<br />

might have reflected, among<br />

o<strong>the</strong>r things, a large population<br />

<strong>of</strong> children with disabilities<br />

living in institutions, which<br />

are not subject to household<br />

surveys.<br />

MEASURING CHILD DISABILITY<br />

69

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