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State of the World's Children 2013 - Unicef

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A strategy for intervention on behalf <strong>of</strong> children identified as<br />

having a disability should be incorporated in <strong>the</strong> assessment<br />

from <strong>the</strong> earliest stages <strong>of</strong> planning.<br />

weekends, which was convenient<br />

for children and <strong>the</strong>ir<br />

families.<br />

It is also important to adapt<br />

<strong>the</strong> composition <strong>of</strong> <strong>the</strong> core<br />

assessment team and <strong>the</strong> type<br />

<strong>of</strong> tools used to local capacity.<br />

At <strong>the</strong> time <strong>of</strong> <strong>the</strong> study, both<br />

Cambodia and Bhutan faced a<br />

shortage <strong>of</strong> qualified assessors.<br />

In Cambodia this was overcome<br />

by employing a mobile assessment<br />

team, while in Bhutan<br />

emphasis was put on training<br />

mid-level pr<strong>of</strong>essionals. The<br />

availability <strong>of</strong> specialists cannot<br />

be taken for granted – in<br />

<strong>the</strong> case <strong>of</strong> Cambodia, <strong>the</strong> lead<br />

hearing specialist was brought<br />

in from abroad.<br />

Assessment tools – questionnaires<br />

and tests – should be<br />

locally validated and culturally<br />

appropriate. Careful attention<br />

must be paid to language. One<br />

<strong>of</strong> <strong>the</strong> challenges encountered<br />

in Cambodia pertained to<br />

translating assessment instruments<br />

from English to Khmer,<br />

and especially finding linguistic<br />

equivalents for <strong>the</strong> concepts<br />

<strong>of</strong> impairment and disability.<br />

The diagnostic assessment<br />

form used in <strong>the</strong> Cambodian<br />

study was revised to suit <strong>the</strong><br />

former Yugoslav Republic<br />

<strong>of</strong> Macedonia and <strong>the</strong> local<br />

Chuturich test was utilized for<br />

<strong>the</strong> psychological component<br />

<strong>of</strong> <strong>the</strong> assessment.<br />

Assessment leads<br />

to action<br />

With assessment comes <strong>the</strong><br />

potential for immediate intervention.<br />

In Cambodia, some<br />

children who screened positive<br />

for hearing impairment were<br />

found to have an ear infection<br />

or a build-up <strong>of</strong> ear wax.<br />

This limited <strong>the</strong>ir hearing and<br />

in many cases also <strong>the</strong>ir participation<br />

in school, but, once<br />

identified, <strong>the</strong>ir conditions were<br />

easily treated and more serious<br />

secondary infections and<br />

longer-term impairments were<br />

thus prevented.<br />

Assessment can also aid<br />

awareness raising and spark<br />

change even while <strong>the</strong> processes<br />

<strong>of</strong> collecting and analysing<br />

data are still under way. When<br />

clinical assessments in Bhutan<br />

showed a higher incidence<br />

<strong>of</strong> mild cognitive disabilities<br />

among children from poorer<br />

households and those whose<br />

mo<strong>the</strong>rs had less education,<br />

<strong>the</strong> government decided to<br />

focus on early childhood development<br />

and childcare services<br />

in rural areas, where income<br />

and education levels are lower.<br />

And in <strong>the</strong> former Yugoslav<br />

Republic <strong>of</strong> Macedonia, findings<br />

that revealed unequal<br />

access to education have<br />

spurred plans to improve<br />

school participation and fight<br />

discrimination against children<br />

with disabilities.<br />

A strategy for intervention on<br />

behalf <strong>of</strong> children identified as<br />

having a disability should be<br />

incorporated in <strong>the</strong> assessment<br />

from <strong>the</strong> earliest stages <strong>of</strong> planning.<br />

Such a strategy should<br />

include a mapping <strong>of</strong> <strong>the</strong> available<br />

services, <strong>the</strong> development<br />

<strong>of</strong> referral protocols and <strong>the</strong><br />

preparation <strong>of</strong> informative<br />

materials for families on how<br />

to adjust children’s surroundings<br />

to enhance functioning<br />

and participation in home and<br />

community life.<br />

MEASURING CHILD DISABILITY<br />

71

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