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State of the World's Children 2013 - Unicef

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Data can be hard to ga<strong>the</strong>r: Indigenous households can be<br />

scattered, <strong>of</strong>ten in remote areas. There might not be enough<br />

interviewers who speak indigenous languages.<br />

households can be scattered,<br />

<strong>of</strong>ten in remote areas. There<br />

might not be enough interviewers<br />

who speak indigenous languages.<br />

In many cases, families<br />

deny our existence to <strong>the</strong> people<br />

who conduct surveys. Even<br />

where parents acknowledge<br />

and want to support us, <strong>the</strong>y<br />

can end up providing insufficient<br />

information because <strong>the</strong>y<br />

have little <strong>of</strong> it to begin with, as<br />

<strong>the</strong>re are few if any screening<br />

or diagnostic services. Because<br />

<strong>the</strong> lack <strong>of</strong> such services contributes<br />

to our invisibility, it is<br />

a threat to our physical and<br />

intellectual condition. Adding<br />

to <strong>the</strong> problems, girls and boys<br />

with disabilities <strong>of</strong>ten go unregistered<br />

at birth, and this is one<br />

<strong>of</strong> <strong>the</strong> main obstacles to <strong>the</strong><br />

recognition <strong>of</strong> our citizenship<br />

and our right to public services.<br />

This should motivate research<br />

into disability among indigenous<br />

populations – and <strong>the</strong><br />

results can serve as a starting<br />

point for developing public policies<br />

and services that address<br />

our needs and guarantee our<br />

rights.<br />

The lack <strong>of</strong> access to <strong>the</strong> mainstream<br />

education system must<br />

also be corrected. The inclusion<br />

<strong>of</strong> indigenous children with disabilities<br />

is required under <strong>the</strong><br />

Convention on <strong>the</strong> Rights <strong>of</strong><br />

Persons with Disabilities, but<br />

in practice, inclusion is <strong>of</strong>ten<br />

beyond <strong>the</strong> reach <strong>of</strong> children<br />

from our communities: The<br />

distances <strong>the</strong>y must travel daily<br />

to get to school can be prohibitive.<br />

Few schools have <strong>the</strong><br />

minimum services and facilities<br />

to make learning accessible.<br />

And again, traditional community<br />

practices contribute to <strong>the</strong><br />

lack <strong>of</strong> educational inclusion.<br />

Clan chiefs determine <strong>the</strong> roles<br />

<strong>of</strong> boys and girls from birth and<br />

if a child has a disability, it is<br />

generally thought that sending<br />

her or him to school is a waste<br />

<strong>of</strong> time as well as an undue<br />

economic burden on <strong>the</strong> family.<br />

Many people think that those<br />

<strong>of</strong> us who have a disability are<br />

broken objects that will not be<br />

useful even if we are patched<br />

up. The situation is even worse<br />

for girls, as it is harder for us to<br />

obtain permission to study than<br />

it is for boys with disabilities.<br />

Even when <strong>the</strong> community’s<br />

stigmas are overcome and we<br />

manage to attend school, our<br />

teachers face two obstacles:<br />

insufficient knowledge <strong>of</strong><br />

indigenous languages and<br />

inadequate teacher training in<br />

inclusive education. This lack <strong>of</strong><br />

training makes it more difficult<br />

to include children with disabilities.<br />

As a consequence, we are<br />

forced to rely on <strong>the</strong> goodwill<br />

<strong>of</strong> individual teachers to accept<br />

<strong>the</strong> challenge <strong>of</strong> including<br />

indigenous children with disabilities<br />

in <strong>the</strong>ir classrooms.<br />

In Mexico as elsewhere, governments,<br />

international agencies<br />

and community groups are<br />

striving to eliminate <strong>the</strong> gap<br />

between what is ideal and what<br />

is currently possible. We must<br />

continue to work toge<strong>the</strong>r to<br />

ensure more just and equitable<br />

childhoods, to transform <strong>the</strong><br />

lives <strong>of</strong> indigenous girls and<br />

boys with disabilities with hope<br />

and opportunity – so <strong>the</strong>y, too,<br />

can be free to let <strong>the</strong>ir dreams<br />

take flight.<br />

MEASURING CHILD DISABILITY<br />

73

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