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State of the World's Children 2013 - Unicef

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FOCUS<br />

From screening<br />

to assessment<br />

Child disability measurement<br />

experts agree that screening<br />

efforts, such as interviews<br />

using <strong>the</strong> Ten Questions Screen<br />

(TQ), need to be followed by<br />

in-depth assessments. These<br />

allow <strong>the</strong> initial screening<br />

results to be validated, and<br />

make possible a better understanding<br />

<strong>of</strong> <strong>the</strong> extent and<br />

nature <strong>of</strong> child disability in a<br />

country. Cambodia, Bhutan and<br />

<strong>the</strong> former Yugoslav Republic<br />

<strong>of</strong> Macedonia are three countries<br />

to have undertaken such<br />

assessments. Their experiences<br />

provide important lessons for<br />

<strong>the</strong> measurement <strong>of</strong> child disability<br />

and adaptation <strong>of</strong> methodology<br />

to local context. They<br />

also testify to <strong>the</strong> transformative<br />

power <strong>of</strong> data collection.<br />

In Cambodia, all children<br />

who screened positive under<br />

<strong>the</strong> Ten Questions and a randomly<br />

selected 10 per cent<br />

who screened negative were<br />

referred for fur<strong>the</strong>r assessment<br />

by a multi-pr<strong>of</strong>essional<br />

team consisting <strong>of</strong> doctors,<br />

hearing and vision specialists,<br />

and psychologists. The team<br />

was trained and dispatched<br />

around <strong>the</strong> country to conduct<br />

child disability assessments in<br />

local health centres and similar<br />

facilities. The decision to use<br />

a mobile team <strong>of</strong> specialists<br />

was made to ensure consistent<br />

quality <strong>of</strong> screening across <strong>the</strong><br />

country and to minimize <strong>the</strong><br />

lag between screening and<br />

assessment.<br />

The same sampling approach<br />

was employed in Bhutan,<br />

where <strong>the</strong> screening stage<br />

identified 3,500 children at risk,<br />

out <strong>of</strong> a sample <strong>of</strong> 11,370 children.<br />

A core team <strong>of</strong> seven pr<strong>of</strong>essionals<br />

received two weeks<br />

<strong>of</strong> training in how to conduct<br />

<strong>the</strong> assessment. In turn, <strong>the</strong>y<br />

were responsible for training<br />

ano<strong>the</strong>r 120 health and education<br />

pr<strong>of</strong>essionals. These pr<strong>of</strong>essionals<br />

were <strong>the</strong>n split into<br />

two groups. The first consisted<br />

<strong>of</strong> 30 supervisors recruited<br />

from among general-practice<br />

physicians, paediatricians, eye<br />

specialists, physio<strong>the</strong>rapists<br />

and special educators. The second<br />

group <strong>of</strong> 90 field surveyors<br />

and assessors was made<br />

up largely <strong>of</strong> primary school<br />

teachers and health workers.<br />

The methodology used in <strong>the</strong><br />

former Yugoslav Republic <strong>of</strong><br />

Macedonia was derived from<br />

that used in Cambodia, with<br />

some adaptations shaped by<br />

<strong>the</strong> technical expertise and<br />

tools available in <strong>the</strong> local<br />

context. Two studies were<br />

conducted: a national study<br />

and one focusing on <strong>the</strong> Roma<br />

population. The assessment<br />

consisted <strong>of</strong> one hour with a<br />

physician and psychologist and<br />

a 10–15 minute assessment<br />

with an ophthalmologist and<br />

audiologist.<br />

Experiences in all three<br />

countries demonstrate <strong>the</strong><br />

importance <strong>of</strong> partnerships in<br />

mobilizing limited resources<br />

and ensuring high response<br />

rates, which in turn provide for<br />

robust findings. These partnerships<br />

involved government<br />

agencies and <strong>the</strong>ir international<br />

partners, disabled people’s<br />

organizations and o<strong>the</strong>r civil<br />

society organizations. In <strong>the</strong><br />

former Yugoslav Republic<br />

<strong>of</strong> Macedonia, for example,<br />

partners made it possible<br />

to conduct assessments in<br />

local kindergartens during<br />

70<br />

THE STATE OF THE WORLD’S CHILDREN <strong>2013</strong>: <strong>Children</strong> with Disabilities

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