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The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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A <strong>Clinical</strong> <strong>Guide</strong> <strong>to</strong> <strong>Supportive</strong> <strong>and</strong> <strong>Palliative</strong> <strong>Care</strong> <strong>for</strong> <strong>HIV</strong>/<strong>AIDS</strong> • Chapter 10: Psychiatric ProblemsTable 10-27: Strategies <strong>for</strong> Managing Difficult Patients• Identify the nature of the treatment problem: Pain? Cognitive impairment?Irritability? Non-adherence? Devaluation? Underlying depression, anxiety orpsychosis?• Establish <strong>and</strong> identify the treatment team <strong>and</strong> have the patient sign a consent<strong>for</strong> free <strong>and</strong> unrestricted communication among ALL providers, within thesame system <strong>and</strong> outside (e.g., methadone treatment program staff, casemanagers, housing authority staff).26 picas• Establish concrete treatment goals that are reasonable <strong>and</strong> can be renegotiatedat specified time intervals.• If at all possible, establish an agreement regarding pain management be<strong>for</strong>ethe need <strong>for</strong> pain treatment actually begins. Write a pain managementcontract with rules spelled out regarding refills, how doses will be determined<strong>and</strong> increased, which meds will <strong>and</strong> will not be used.• Set limits on refilling prescriptions, identify which provider will be responsible<strong>for</strong> which medications, <strong>and</strong> who will be covering when the primary prescriberis away. Also set limits on how <strong>and</strong> when patients should access their primarycare provider vs. their mental health provider, person on call, or emergencyservices.• Establish rules of behavior <strong>for</strong> the clinic’s entire patient population. Identifywhat behavior will not be <strong>to</strong>lerated <strong>and</strong> en<strong>for</strong>ce the rules fairly <strong>and</strong> withoutindividual variation. Have the limits <strong>for</strong> behavior clearly spelled out <strong>and</strong>approved by a consumer advisory board or patient constituency group.• When a patient is admitted <strong>to</strong> the hospital <strong>for</strong> medical care or psychiatric care,establish contact with the treatment staff <strong>to</strong> discuss rules regarding limitsetting,making goals clear <strong>and</strong> responding <strong>to</strong> patient requests without bias.• Provide a space <strong>for</strong> clinicians <strong>to</strong> share feelings <strong>and</strong> thoughts about difficultpatients. Knowing that one is not alone in having trouble with a particularpatient can be com<strong>for</strong>ting <strong>and</strong> prevent acting out on the part of the provider.<strong>HIV</strong>-Associated Syndromes with Psychiatric ImplicationsSeveral <strong>HIV</strong>-associated syndromes such as wasting, fatigue, sexual dysfunction <strong>and</strong> pain havepsychiatric implications. As with sleep disturbance, treating complaints that are important <strong>to</strong>patients <strong>and</strong> that affect cognitive functioning will increase patient adherence <strong>to</strong> care <strong>and</strong> helpbuild a therapeutic alliance between patient <strong>and</strong> provider. Pain <strong>and</strong> fatigue are discussed elsewherein this guide. (See Chapter 4: Pain <strong>and</strong> Chapter 5: Constitutional Symp<strong>to</strong>ms.)Wasting syndrome <strong>and</strong> sexual dysfunction are often associated with impaired self image, a senseof being defective, <strong>and</strong> body dysmorphia. <strong>The</strong>se feelings can lead <strong>to</strong> obsessional concerns <strong>and</strong>behaviors. Tes<strong>to</strong>sterone replacement may be beneficial in these settings. 87,88 While tes<strong>to</strong>steronemay improve libido, it may not address all sexual dysfunctions. Underlying problems such as244U.S. Department of Health <strong>and</strong> Human Services • Health Resources <strong>and</strong> Services Administration • <strong>HIV</strong>/<strong>AIDS</strong> Bureau

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