The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 26: ResourcesThe GRACE Project: Part of Volunteers of America, the GRACE Project has standards of carefor palliative care in correctional institutions and other resources for end-of-life care for incarceratedor recently released people with HIV/AIDS, including a handbook for caregivers andmanagers, 26 a brochure picas on grief for people in prisons or jails, articles, and a videotape for traininginstitutional staff.• Phone: 703-341-5000• www.graceprojects.orgGuidelines for Determining Prognosis for Selected Non-Cancer Diagnoses: National HospiceOrganization.• Alexandria, FA: National Hospice Organization, 1996.The Growth House, Inc.: Extensive resources available on living with life-threatening illnesses,and on care in death and dying. Topics on the site include HIV/AIDS, estate planning, grief,hospice and home care, pain management, and children dealing with death.• www.growthhouse.org/• HIV/AIDS general resources: www.growthhouse.org/hivlinks.html• Phone: 415-255-9045; e-mail: info@growthhouse.orgHandbook for Mortals: Guidance for People Facing Serious Illness, Joanne Lynn, MD andJoan Harrold, MD, and the Center to Improve Care of the Dying, George Washington University.• Published by Oxford University Press: 1999, ISBN 0195116623Improving Care for the End-of-Life: A Sourcebook for Health Care Managers and Clinicians,Joanne Lynn, MD, Janice Lynch Schuster, Andrea Kabcenell, RN, MPH• Published by Oxford University Press: 2000, ISBN 0195116615International Association for Hospice and Palliative Care: IAHPC aims to improve the development,quality, and access to hospice and palliative care around the world. Information isavailable through an on-line newsletter, Internet links, bookshop, events calendar, fellowships,fact sheets, and an ethical issues page.• www.hospicecare.com/• Fax: 713-339-9041; E-mail: sitemngr@hospicecare.comJoint Commission on Accreditation of Healthcare Organizations: Pain management standardsfor accreditation of healthcare organizations.• www.jcaho.org/standard/pm_hap.htmlLast Acts: A Robert Wood Johnson Foundation funded campaign. The organization aims toincrease the quality of end-of-life care, stating that their goals are to bring death related issuesout in the open and help individuals and organizations pursue better ways to care for the dying.Through the site, one can access an electronic newsletter, a bookshop, and various media resources.• www.lastacts.org/XXVIU.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau 517