The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 14: Culture and Care26 picasREFERENCES1. Marshall P. Cultural influences on perceived quality of life. Semin Oncol Nurs 6:278-84, 1990.2. Locke DC. Increasing Multicultural Understanding: A Comprehensive Model. Newbury Park, CA:Sage, 1998.3. Kleinman A, Eisenberg L, Good B. Culture, illness and care. Clinical lessons from anthropologicand cross-cultural research. Ann Intern Med 88:251-8, 1978.4. Zborowski M. People in Pain. San Francisco: Jossey-Bass, 1969.5. Chrisman NJ. The health-seeking process: an approach to the natural history of disease. Cult MedPsychiatry 1:351-77, 1977.6. Wood PR, Zeltzer LK, Cox AD. Communicating with adolescents from culturally varied backgrounds:a model based on Mexican-American adolescents in South Texas. Semin Adolesc Med 3:99-108, 1987.7. Nuland SB. How We Die: Reflections on Life’s Final Chapter. New York: Vintage Books, 1993, p. 173.8. Russel S. AIDS death rates fall among adults 25 to 44. San Francisco Chronicle, September 12, 1997, p.A1.9. Amaro H. Considerations for prevention of HIV infection among Hispanic women.Psych Women Q 12:420-43, 1988.10. Talamantes MA, Gomez C, Braun K. Advance directives and end of life care: the Hispanic perspective.In Braun KL, Pietsch JH, Blanchette PL, eds. Cultural Issues in End of Life Decision Making.Newbury Park, CA: Sage Publications, 2000, p. 84.11. McCready WC. Culture and Religion. In Cafferty PSJ, McCready WC, eds. Hispanics in the United States:A New Social Agenda. New Brunswick, NJ: Transaction Publishers, 1994.12. Sandoval M. Santeria: Afrocuban concepts of disease and its treatment in Miami. Journal of OperationalPsychiatry 8:52-63, 1977.13. Rael R, Koete AO. El ciclo de la vida y muerte: an analysis of death and dying in a selected Hispanic enclave.In Applewhite SR, ed. Hispanic Elderly in Transition: Theory, Research, Policy, and Practice.Westport, CT: Greenwood, 1988.14. Bastida E. Reexamining assumptions about extended familism: older Puerto Ricans in a comparativeperspective. In Sotomayor M, Curiel H, eds. Hispanic Elderly: A Cultural Signature.Edinburg, TX: Pan American University Press, 1988.15. Cuellar JB. Hispanic American aging: geriatric education curriculum development for selected healthprofessionals. In Harper MS, ed. Minority Aging: Essential Curricula Content for Selected Health andAllied Health Professions. Washington, DC: Dept. of Health and Human Services, 1990.(Publication # [HRS] P-DV-90-4).16. Ferriss S. Fatalismo: a health threat for Latinos. San Francisco Examiner, January 19, 1993.17. CDC. HIV/AIDS Surveillance Report. Atlanta GA: U.S. Department of Health and Human Services, 2001.18. Diaz RM. Latino Gay Men and HIV: Culture, Sexuality and Risk Behavior. New York: Routledge, 1998.19. Blackhall LJ, Murphy DT, Frank G, Michel V, Azen S. Ethnicity and attitudes toward patient autonomy.JAMA 10:820-5, 1995.20. Talamantes MA, Gomez C. Knowledge and use of advance health directives by Mexican American elderly.Paper presented at the annual meeting of the Gerontological Society of America, Washington, DC,November, 1996.312U.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau
A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 14: Culture and Care21. Murphy, ST, Palmer, JM, Weber EP, Advance end of life treatment planning: A research review.Arch Int Med 156:1062-8, 1996.22. Caralis PV, Davis B, Wright K, Marcial E. The influence of ethnicity and race on attitudes toward advancedirectives, 26 picas life-prolonging treatments, and euthanasia. J Clinl Ethics 4:155-65, 1993.23. Sotomayor M, Randolph S. A preliminary review of caregiving issues and the Hispanic family. In SotomayorM, Curiel H, eds. Hispanic Elderly: A Cultural Signature. Edinburg, TX: Pan American University Press,1988.24. Wallace SP, Lew-Ting C. Getting by at home: community-based long-term care of Latino elders.West J Med 157:337-44, 1992.25. Spinetta J. Measurement of family function, communication and cultural effects. Cancer 53:2330-7, 1984.26. Talamantes, MA. Community education on advance health care directives. Paper presented at the annualmeeting of the American Society on Aging, Chicago, IL, March, 1993.27. Perkins HS, Supik JD, Hazuda HP. Autopsy decisions: the possibility of conflicting cultural attitudes.J Clin Ethics 4:142-54, 1993.28. Mouton CP. Cultural and religious issues for African Americans. In Braun KL, Pietsch JH, Blanchetter PL.Cultural Issues in End of Life Decision Making. Newbury Park, CA: Sage Publications, 2000.29. Gardner P, Hudson BL. Advance report of final mortality statistics, 1993. Monthly Vital Statistics Report44(7 Suppl). Hyattsville, MD: National Center for Health Statistics, 1996.30. McGoldrick M, Hines P, Lee E, Preto NG. Mourning rituals: how culture shapes the experience of loss.Network Nov-Dec:29-36, 1986.31. Sudarkasa N. African and Afro-American family structure. In Colle JB, ed. Anthropology for the Nineties.New York: Collier Macmillan, 1988.32. Poole TG. Black families and the black church: a sociohistorical perspective. In Cheatham HE, Stewart JB,eds. Black families. Interdisciplinary Perspectives. Somerset, NJ: Transaction Publisher, 1990.33. Butler JP. Of kindred minds: the ties that bind. In Orlandi MA, ed. Cultural Competence for Evaluation:A Guide for Alcohol and Drug Abuse Prevention Practicioners Working with Ethnic/Racial Communities.Rockville, MD: U.S. Dept. of Health and Human Services, 1992.34. Ellison CG, Sherkat SE. Patterns of religious mobility among African Americans. Sociol Q 4:551-66, 1990.35. Lincoln CE, Mayima LH. The African American Church in the African American experience. Durham, NC:Duke University Press, 1991.36. Mouton CP, Johnson MS, Cole, DR. Ethical considerations in African American elders. Clin Geriatr Med11:113-29, 1995.37. Council on Ethical and Judicial Affairs. African American-Caucasian disparities in health care. JAMA263:2344-6, 1990.38. Bach PB, Cramer LD, Warren JL, Begg CB. Racial differences in the treatment of early-stage lung cancer.N Engl J Med 341:1198-205, 1999.39. Greenwald HP, Polissar NL, Borgatta EF, McCorkle R, Goodman G. Social factors, treatment, and survival inearly-stage non-small cell lung cancer. Am J Pub Health 88:1681-4, 1998.40. Lincoln CE. Race, Religion, and the Continuing American Dilemma. New York: Hill and Wang, 1984.41. Klonoff EC, Landrine H. Do blacks believe that HIV/AIDS is a government conspiracy against them?Prev Med 28:451-7, 1999.42. Todd KH. Pain assessment and ethnicity. Ann Emerg Med 27:421-3, 1996.43. Todd KH, Samaroo N, Hoffman JR. Ethnicity as a risk factor for inadequate emergency department analgesia.JAMA 269:1537-9, 1993.44. Anderson KO, Mendoza TR, Valero V, et al. Minority cancer patients and their providers: pain managementattitudes and practice. Cancer 88:1929-38, 2000.XIVU.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau 313
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DedicationA Clinical Guide to Suppo
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Lynn A Jansen, RN, PhDAssistant Res
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TABLE OF CONTENTSPart IChapter 1Cha
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IChapter 1.26 picasHIV and Palliati
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IA Clinical Guide to Supportive and
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A Clinical Guide to Supportive and
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IIIChapter 3.Assessment of Physical
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Chapter 6.26 picasPulmonary Symptom
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Chapter 8.26 picasOral ProblemsDavi
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Chapter 9.26 picasDermatologic Prob
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Chapter 10.26 picasPsychiatric Prob
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Chapter 11.26 picas Substance Use P
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Chapter 18.26 picasLegal and Financ
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Chapter 19.Palliative 26 picas Care
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Chapter 21.26 picas Patient-Clinici
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Chapter 23.26 picas Medical Care in
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Chapter 25.26 picas Prevention of S
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Chapter 26.26 picasResourcesMagda B
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DRUGS AND THERAPIES INDEXNOTES: Ent
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