The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 26: ResourcesThe Orphan Project: This project explores policy options to meet the needs of the entire spectrumof affected children from dying infants to healthy adolescents. Numerous books and othermaterials addressing policy issues related to care of children.26 picas• www.aidsinfonyc.org/orphan/WHO Cancer Pain Relief and Palliative Care in Children (1998): Taking a holistic, comprehensiveapproach to palliative care, this guide reviews pain management and therapy, as well associal, spiritual, and psychological issues in palliative care. The book also has information onhealth care provider education, and policies and legislation related to palliative care.• Report can be reached at www.who.int/ncd/cancer/publications/books/ca_pain_relief_pall_care_in_children.html• To order a copy, check your nearest sales agent at: www.who.int/dsa/cat97/zsale.htmorWHO Headquarters, WHO, Marketing and Dissemination, CH-1211 Geneva 27,Switzerland,• Phone: +41 22 791 24 76; Fax: +41 22 791 48 57; E-mail: publications@who.chVI. CLINICIAN EDUCATIONEducation for Physicians on End-of-Life Care: Supported through a Robert Wood JohnsonFoundation grant, EPEC.net “is designed to educate all physicians on the essential clinical competenciesrequired to provide quality end-of-life care.” The site educates clinicians through atraining curriculum, speakers list, resource guide, and electronic mailing list/discussion board.• www.epec.net/End-of-Life Nursing Education Consortium (ELNEC) Project: This site is sponsored throughthe American Association of Colleges of Nursing and funded by a Robert Wood Johnson Foundationgrant. The project goals are to both “develop a core of expert nursing educators and tocoordinate national nursing education efforts in end-of-life care.” A nine-module curriculum isavailable, along with a list of nurse educators, publications on nursing in palliative care, and anon-line newsletter.• www.aacn.nche.edu/elnec/• Phone: 202-463-6930, ext. 240• End-of Life Care, a series of six 1-hour videotapes, offering continuing education credit.Produced by the American Association of Colleges of Nursing, the National Institute ofNursing Research, and the Association of Academic Health Centers. The video seriesmay be ordered at www.centernet-tv.com/net/endoflife.html or call Healthcare ManagementTelevision at 202-662-7285, ext. 5.End-of-Life Physician Education Resource Center: EPERC is funded by the Robert WoodJohnson Foundation, and is hosted by the Medical College of Wisconsin. The site provides linksto high quality information, conferences and educational materials on end-of-life issues. Educationalmaterials may be submitted for review, and a discussion board is available.• www.eperc.mcw.edu/• Phone: 414-456-4353; E-mail: eperc@mcw.edu524U.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau
A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 26: ResourcesInternational AIDS Society-USA: This not-for-profit continuing medical education organizationoffers up-to-date information for physicians who are actively involved in the care of peopleliving with HIV/AIDS. Information is disseminated through CME courses around the US, thepublication 26 Topics picas in HIV Medicine, and the development of treatment guidelines.• www.iasusa.org/• Phone: 415-561-6720; Fax: 415-561-6740; E-mail: info@iasusa.orgWorld Health Organisation: A fact sheet on palliative care can be downloaded from the WHOwebsite.• www.who.int/hiv/topics/palliative/palliativecare/en/VII. PROFESSIONAL ASSOCIATIONSAmerican Academy of Hospice and Palliative Medicine: AAHPM is a palliative care physicianorganization that provides education and clinical practice standards, promotes research, helpswith professional development of its members, and advocates for public policy. This is a membershiporganization, but most areas on the web site are available to the general public. Aquarterly newsletter is provided with membership.• www.aahpm.org/• Phone: 847-375-4712; Fax: 877-734-8671; E-mail: aahpm@aahpm.org• Self-training modules for physicians in palliative care, or UNIPACs. CME credit is offeredfor these modules. Topics include pain management, ethics, psychosocial issues,HIV care, and pediatrics. www.aahpm.org/unipac’s.htm. Modules can be orderedthrough Kendall/Hunt Customer Service, Kendall/Hunt Publishing Company, 4050Westmark Drive, P.O. Box 1840, Dubuque, Iowa 52004-1840; www.kendallhunt.com;Phone: 1-800-228-0810 (US) or 1-319-589-1000 (International); Fax: 1-800-772-9165 (US)or 1-319-589-1046 (International)American Academy of Pain Medicine: AAPM promotes quality of care for patients with painthrough research, education, and advocacy. Career opportunities, CME, and provider resourcesare available on the site.• www.painmed.org/• Phone: 847-375-4731; Fax: 847-375-6331; E-mail: aapm@amctec.comAmerican Board of Hospice and Palliative Medicine: ABHPM supports high quality palliativecare for patients with advanced, progressive illness by offering a certification exam in hospiceand palliative medicine for physicians. ABHPM also has a newsletter and educational resourceson-line.• www.abhpm.org/• Phone: 301-439-8001; E-mail: mail@abhpm.orgAmerican Psychiatric Association AIDS Resource Center: The Center offers “education andtraining, resources, information, policies, and a network of clinical expertise on the mentalhealth dimensions of HIV/AIDS.”• www.psych.org/aids/XXVIU.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau 525
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DedicationA Clinical Guide to Suppo
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Lynn A Jansen, RN, PhDAssistant Res
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TABLE OF CONTENTSPart IChapter 1Cha
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IChapter 1.26 picasHIV and Palliati
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IA Clinical Guide to Supportive and
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A Clinical Guide to Supportive and
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IIIChapter 3.Assessment of Physical
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Chapter 6.26 picasPulmonary Symptom
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Chapter 8.26 picasOral ProblemsDavi
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Chapter 9.26 picasDermatologic Prob
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Chapter 10.26 picasPsychiatric Prob
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Chapter 11.26 picas Substance Use P
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Chapter 14.26 picasCulture and Care
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Chapter 15.26 picasSpecial Populati
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Chapter 17.26 picasEthical IssuesLy
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Chapter 18.26 picasLegal and Financ
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Chapter 19.Palliative 26 picas Care
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Chapter 21.26 picas Patient-Clinici
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Page 484 and 485: A Clinical Guide to Supportive and
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Page 525 and 526: Chapter 26.26 picasResourcesMagda B
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DRUGS AND THERAPIES INDEXNOTES: Ent
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