The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 26: ResourcesNational Clearinghouse for Alcohol and Drug Information (NCADI): Numerous documentson diagnosis and treatment of substance abuse, including specific to people living with HIV andvulnerable populations.26 picas• www.health.org/• HIV/AIDS information: www.health.org/catalog/catalog.asp?pop=9• Phone: 800-729-6686, TDD 800-487-4889Recovering from the Loss of a Loved One to AIDS: Help for Surviving Family, Friends,and Lovers Who Grieve, Katherine Fair Donnelly.• Fawcett Books, 1995 (out of print), ISBN: 0595168604IX. HIV/AIDS CLINICAL CAREAegis: A comprehensive web site of HIV information and resources. The site includes clinicaland treatment information, as well as a large searchable database for information and reportson topics such as palliative care, legal issues, and hospice. A very good source of up-to-dateinformation from the mainstream press, professional journals, government, and legal and legislativesources.• www.aegis.com/A Guide to the Clinical Care of Women with HIV, Jean R Anderson, Editor.• Health Resources and Services Administration, 2001 edition• Available online at www.hab.hrsa.gov/ , then click on the link for the Women’s Guide.Or order by e-mail: womencare@hrsa.gov; by fax to the attention of “Womencare”: 301-443-0791; or write to: Womencare, Parklawn Building, Room 11A-33, 5600 Fishers Lane,Rockville, Maryland 20857, USAAIDS info: This web site provides all the DHHS HIV treatment guidelines, updated as new databecome available.• www.aidsinfo.nih.gov/HIVDent: This site promotes high quality oral health care services to people living with HIV/AIDS. It include information on the oral manifestations of HIV/AIDS with a large library ofphotographs. Educational materials are available for providers and people living with HIV/AIDS.• www.hivdent.org/HIV InSite: From the University of California San Francisco, this comprehensive web site offersinformation on the medical aspects of HIV/AIDS, prevention, policy, and international issues.The AIDS Knowledge Base is a manual on HIV/AIDS treatment.• www.hivinsite.ucsf.edu/InSiteHRSA HIV/AIDS Bureau: The web site of the Federal agency that administers the Ryan WhiteCARE Act funding (Health Resources and Services Administration, or HRSA). There are somelinks to palliative care information on this site. Additionally, the site has information on gettingcare and HIV/AIDS drugs, grant applications, and resources.• www.hab.hrsa.gov/528U.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau
A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 26: Resources• Click on “tools to help CARE Act programs” for a listing of resources on numeroustopics, including palliative care.• Click on Evaluation/SPNS (www.hab.hrsa.gov/evaluation.html) for information on the26 picasSpecial Projects of National Significance. Click on SPNS initiatives for a listing of theprojects, including demonstration projects in palliative care.• www.ask.hrsa.gov for an information distribution center,or call 1-888-ASK-HRSA (275-4772)Johns Hopkins AIDS Service: A comprehensive web site of HIV information and resources,including publications, medical education, provider and consumer interactive forums for seekinganswers to questions, and resources and information on managed care, epidemiology, prevention,and treatment.• www.hopkins-aids.edu/• Click on publications for the manual Medical Management of HIV by John G. Bartlett,MD, or call 800-787-1254 to order the manual.• Click on publications for the newsletter Hopkins HIV Report, or write to The HopkinsHIV Report, PO Box 5252, Baltimore, MD 21224, Attn: Distribution, for a free subscriptionof the newsletter.Medscape HIV/AIDS Page: Offers HIV/AIDS resources in CME, clinical updates, clinical management,conference coverage.• www.medscape.com/Home/Topics/AIDS/AIDS.html• Antiretroviral Reference Guide: This guide contains information on antiretroviral summarytables, drug-drug combinations, antiretroviral resistance mutations, methadone/antiretroviral drug interactions, and TB medication/antiretroviral drug interactions.It can be viewed as an HTML file, downloaded in Adobe Acrobat format, or downloadedfor Palm Pilot. This file can be found under the “Clinical Updates” section ofthe web site above or at www.medscape.com/Medscape/HIV/TreatmentUpdate/1998/tu01/eng/pnt-eng.tu01.htmlNational HIV/AIDS Clinician Consultation Center: This service is run by the University ofCalifornia San Francisco with the AIDS Education and Training Centers (AETCs) from HRSA.Technical assistance is included on the site along with the help lines for telephone consultationslisted below.• www.ucsf.edu/hivcntr/• Clinician Warmline for clinical consultations: 1-800-933-3413,6:00 a.m.-5:00 p.m., Mon.-Fri.• Post-exposure Prophylaxis (PEP) Hotline: 1-888-448-4911,24 hours a day, 7 days a weekNIAID Database for Anti-HIV Compounds: This comprehensive database offers informationon anti-HIV drugs, including viral life cycle, chemical structures, resistance, and in-vitro activity.• www.niaid.nih.gov/daids/dtpdb/University of Liverpool Drug Interactions Web site: This web site offers up-do-date and interactiveinformation about drug interactions.• www.hiv-druginteractions.orgXXVIU.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau 529
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DedicationA Clinical Guide to Suppo
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Lynn A Jansen, RN, PhDAssistant Res
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TABLE OF CONTENTSPart IChapter 1Cha
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IChapter 1.26 picasHIV and Palliati
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IA Clinical Guide to Supportive and
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A Clinical Guide to Supportive and
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IIIChapter 3.Assessment of Physical
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Chapter 6.26 picasPulmonary Symptom
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Chapter 8.26 picasOral ProblemsDavi
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Chapter 9.26 picasDermatologic Prob
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Chapter 11.26 picas Substance Use P
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Chapter 14.26 picasCulture and Care
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Chapter 15.26 picasSpecial Populati
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Chapter 17.26 picasEthical IssuesLy
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Chapter 19.Palliative 26 picas Care
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DRUGS AND THERAPIES INDEXNOTES: Ent
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The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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