The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 26: ResourcesCanadian Palliative Care Association: The CPCA ’s consensus document on Standardized Principlesand Practice of Palliative Care presents guidelines for national committees to follow indeveloping standards; it is a clear framework for the process, with sample goals, objectives,essential 26 steps, picasaccompanying policies and procedures, and desirable outcomes.• www.cpca.netCDC Global AIDS Program Technical Strategies – Palliative Care: This is a guide from theCDC that offers a strategic plan on implementing global AIDS strategies. The plan also discussessome best practices and global models of palliative care in HIV/AIDS.• www.cdc.gov/nchstp/od/gap/strategies/4_3_palliative_care.htmCrossing Borders: Migration, Ethnicity and AIDS: Mary Haour-Knipe and Richard Rector,Editors.• Bristol, PA: Taylor & Francis Inc, 1996.• ISBN: 0 7484 03779, 07484 03787 pbkThe Enhancing Care Initiative ECI is a collaborative effort of the Harvard AIDS Institute withAIDS Care Teams in Brazil, Puerto Rico, Senegal, South Africa and Thailand. The focus of thisinitiative is to implement continuity of care programs that provide care in ten areas. Theseinclude prevention approaches with HIV counseling and testing, basic medical care services,and community-based care with care for the dying and care for caregivers.• www.eci.harvard.eduGlobal Health Council: The mission is “to mobilize effective action by advocating for neededpolicies and resources, building networks and alliances among those working to improve health,and communicating innovative ideas, knowledge and best practices in the health field.” One oftheir major health topics is HIV/AIDS. Global news updates, newsletters, and a resource exchangeare some of what is offered on the web site.• www.globalhealth.org/• E-mail: ghc@globalhealth.org• For information on HIV/AIDS and advocacy, contact the Washington office at1701 K Street, NW, Suite 600, Washington, DC, 20006-1503. Phone: 202-833-5900,Fax 202-833-0075An Introduction to the Integrated Community-Based Home Care Model (I.C.H.C.). Videotape.Hospice Association of South Africa, 2001.• Produced by ASI, email: magweni@kindsley.co.zaHospice Uganda: This hospice is a model hospice under the Hospice Africa program, which wasinitiated to promote the development of hospice in African countries that have not yet hadpalliative medicine services. Hospice Uganda has been offering services in palliative care forcancer and AIDS since 1993. In addition to the provision of comprehensive palliative care services,Hospice Uganda provides education in palliative medicine, and encourages the initiationof hospice in other African countries.• www.hospice-africa.merseyside.org/hospice.html532U.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau
A Clinical Guide to Supportive and Palliative Care for HIV/AIDS • Chapter 26: Resources• Mailing address: Hospice Uganda, PO Box 7757, Kampala, Uganda• Phone: 256-41-266867 or 256-41-269445; Fax: 256-41-26788;E-mail: hospiceu@africaonline.co.ug26 picasHIV and Immigrants: A Manual for AIDS Service Providers: Produced by the National ImmigrationProject of the National Lawyers Guild, this manual provides a comprehensive and detailedpresentation of issues related to immigrants and HIV. The manual is available free ofcharge from the San Francisco AIDS Foundation, P.O. Box 426182, San Francisco, CA 94142.• Phone: 415-487-3080; Fax: 415-487-3089.• www.sfaf.org/policy/immigration/appendix_c.htmlThe Immigration and Refugee Services of America (IRSA) Medical Case Management Program:This program provides technical assistance to organizations that are resettling refugeeswith special health care needs. In the current phase of the program, IRSA is working with nationaland community based resettlement agencies to enhance organizational capacity to providecare for HIV-positive clients and to create partnerships with AIDS service providers.• Phone: 202-797-2105• Email: irsa@irsa-uscr.orgKing’s College Department of Palliative Care and Policy/St. Christopher’s Hospice: Locatedin London, England, this program provides a model for integrated palliative care services. Ongoingresearch and evaluation of palliative care services takes place at the university along sideeducation and training of professionals.• www.kcl.ac.uk/kis/schools/kcsmd/palliative/top.htm• Phone: +44 0 20 7346 3995; Fax: +44 0 20 7346 3864• There is also a Hospice Information Service offered through St. Christopher’s Hospice.A newsletter, fact sheets, and an international hospice locator service is availablethrough the HIS.• www.hospiceinformation.co.uk/, or Phone: + 44 0 20 8778 9252; Fax: + 44 0 20 87769345; E-mail: info@his2.freeserve.co.ukMildmay International Centre in Uganda: This centre near Kampala, Uganda “effectively combinesa clinical outpatient service with a study centre to train and develop people in HIV/AIDScare and management.” Description of the clinical services and training courses are offered onthe web site.• www.mildmay.org.uk/UgandaCentre.html• Phone: + 44 1702 394450; Fax: + 44 1702 394454; E-mail: mildint@globalnet.co.ukNational Immigration Project of the National Lawyers Guild: Provides contacts to local immigrationadvocates and a legal training packet designed for immigration practitioners as wellas advice and information to AIDS service providers.• Phone: 617-227-9727• Email: nip@igc.apc.orgXXVIU.S. Department of Health and Human Services • Health Resources and Services Administration • HIV/AIDS Bureau 533
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DedicationA Clinical Guide to Suppo
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Lynn A Jansen, RN, PhDAssistant Res
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TABLE OF CONTENTSPart IChapter 1Cha
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IChapter 1.26 picasHIV and Palliati
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IA Clinical Guide to Supportive and
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A Clinical Guide to Supportive and
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IIIChapter 3.Assessment of Physical
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Chapter 6.26 picasPulmonary Symptom
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Chapter 8.26 picasOral ProblemsDavi
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Chapter 9.26 picasDermatologic Prob
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Chapter 10.26 picasPsychiatric Prob
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Chapter 11.26 picas Substance Use P
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Chapter 14.26 picasCulture and Care
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Chapter 15.26 picasSpecial Populati
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Chapter 17.26 picasEthical IssuesLy
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Chapter 18.26 picasLegal and Financ
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Chapter 19.Palliative 26 picas Care
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Chapter 21.26 picas Patient-Clinici
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Chapter 23.26 picas Medical Care in
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DRUGS AND THERAPIES INDEXNOTES: Ent
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The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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