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The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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A <strong>Clinical</strong> <strong>Guide</strong> <strong>to</strong> <strong>Supportive</strong> <strong>and</strong> <strong>Palliative</strong> <strong>Care</strong> <strong>for</strong> <strong>HIV</strong>/<strong>AIDS</strong> • Chapter 3: Assessment of Physical Symp<strong>to</strong>msdeveloped <strong>for</strong> use in assessing the symp<strong>to</strong>ms of patients receiving palliative care. 64 <strong>The</strong> ESAS,Figure 3-7, has been shown <strong>to</strong> be a valid instrument in cancer populations. 65 In addition <strong>to</strong>assessing specific symp<strong>to</strong>ms, it contains a “distress” score that tends <strong>to</strong> reflect physical wellbeing.Additional26 picasstudies are needed <strong>to</strong> confirm its value in patients with <strong>HIV</strong>-related illness.<strong>The</strong> Memorial Symp<strong>to</strong>m Assessment Scale (MSAS) 6 is a validated, patient-rated measure thatprovides multidimensional in<strong>for</strong>mation about a diverse group of common symp<strong>to</strong>ms (see Figure3-1). This instrument assesses 32 physical <strong>and</strong> psychological symp<strong>to</strong>ms in terms of intensity,frequency <strong>and</strong> distress. <strong>The</strong> MSAS has been used in research studies of patients with advanced<strong>HIV</strong>-related illness <strong>and</strong> has been modified <strong>for</strong> the pediatric setting. 3, 5, 44 Although this is a mosthelpful measure in research settings, its utility in the routine clinical setting may be limited.Recent research has, however, explored the role of an MSAS short version (Figure 3-8) that maybe more useful in the clinical setting. 7Holzemer, et al., recently published research <strong>to</strong> validate a sign <strong>and</strong> symp<strong>to</strong>m assessment <strong>to</strong>ol <strong>for</strong>assessing the intensity of <strong>HIV</strong>-related symp<strong>to</strong>ms. 66 <strong>The</strong> current version is a 26-item scale. Thisinstrument is also likely <strong>to</strong> be used in the research setting; however, clinicians may wish <strong>to</strong>consider its clinical applications.IIIUsing Signs <strong>to</strong> Moni<strong>to</strong>r Symp<strong>to</strong>msSome clinical signs may be useful indica<strong>to</strong>rs of symp<strong>to</strong>ms <strong>and</strong> there<strong>for</strong>e it may be helpful <strong>to</strong>moni<strong>to</strong>r these routinely in certain clinical settings. For example, the moni<strong>to</strong>ring of patient temperatureor the frequency of bowel movements <strong>and</strong>/or emesis may be useful routine methods ofdetecting—or even anticipating <strong>and</strong> preventing—symp<strong>to</strong>ms that relate <strong>to</strong> these signs (e.g.,sweats, chills, abdominal pain, <strong>and</strong> nausea).In summary, measurement has a key role in the assessment of symp<strong>to</strong>ms. Although measuresfrequently have limitations, if clinicians remain aware of these limitations the measurement ofsymp<strong>to</strong>ms is likely <strong>to</strong> enhance their ability <strong>to</strong> effectively moni<strong>to</strong>r <strong>and</strong> treat patient distress.CONCLUSION■ Systematic symp<strong>to</strong>m assessment is a foundation of clinical practice <strong>and</strong> is crucial in treating<strong>HIV</strong>-related disease. <strong>Care</strong>ful <strong>and</strong> meticulous clinical assessment should elicit the patient’sperception of distressing symp<strong>to</strong>ms <strong>and</strong> the pathophysiology responsible <strong>for</strong> each symp<strong>to</strong>m. Acomprehensive assessment will facilitate the development of a treatment plan that can focus ontreating reversible pathologic processes, alleviating distress, <strong>and</strong> promoting quality of life.U.S. Department of Health <strong>and</strong> Human Services • Health Resources <strong>and</strong> Services Administration • <strong>HIV</strong>/<strong>AIDS</strong> Bureau 65

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