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The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

The Clinical Guide to Supportive and Palliative Care for HIV/AIDS

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A <strong>Clinical</strong> <strong>Guide</strong> <strong>to</strong> <strong>Supportive</strong> <strong>and</strong> <strong>Palliative</strong> <strong>Care</strong> <strong>for</strong> <strong>HIV</strong>/<strong>AIDS</strong> • Chapter 13: Spiritual <strong>Care</strong>Once a spiritual assessment has been made, then the appropriate spiritual intervention shouldbe offered. While spiritual <strong>and</strong> religious interventions can be provided by any clinician, integratinga pas<strong>to</strong>ral care provider in the health care team will ensure that the team becomes familiarwith religious26 picas<strong>and</strong> spiritual issues <strong>and</strong> that patient’s spiritual needs are met. Some examples ofspiritual practices are meditation, guided imagery, art, journaling, spiritual direction, pas<strong>to</strong>ralcounseling, yoga, religious ritual <strong>and</strong> prayer.Appropriate referrals <strong>to</strong> chaplains <strong>and</strong> other pas<strong>to</strong>ral care providers are as important <strong>to</strong> goodhealthcare practice as are referrals <strong>to</strong> other specialists. It has been argued that discussionswith patients about spiritual matters should be initiated solely by chaplains. 21 Others recognizethat healthcare providers can use spiritual his<strong>to</strong>ries as a screening <strong>to</strong>ol <strong>to</strong> underst<strong>and</strong> the rolethat a patient’s beliefs play in his or her health <strong>and</strong> illness. Some patients may have complicatedethical <strong>and</strong> spiritual issues. Providers need not feel that they must solve these dilemmas;most physicians are not trained <strong>to</strong> deal with complex spiritual crises <strong>and</strong> conflicts. Chaplains<strong>and</strong> other spiritual caregivers are, <strong>and</strong> often work with physicians in the care of patients.It is important that healthcare providers be aware of their own values, beliefs, <strong>and</strong> attitudes,particularly <strong>to</strong>ward their own mortality. A spiritual perspective on care recognizes that the clinician-patientrelationship is ultimately a relationship between two human beings. Confrontingpersonal mortality enables a provider <strong>to</strong> better underst<strong>and</strong> <strong>and</strong> empathize with what the patientis facing, <strong>to</strong> better h<strong>and</strong>le the stress of working with seriously ill <strong>and</strong> dying people, <strong>and</strong> <strong>to</strong> <strong>for</strong>mdeeper <strong>and</strong> more meaningful connections with the patient.PASTORAL CAREXIII<strong>The</strong> Role of the ChaplainIn recent years the chaplain has become an increasingly important member of the healthcareteam. Traditionally, the role of the chaplain has been <strong>to</strong> administer <strong>to</strong> the patient certain prayers<strong>and</strong> rites particular <strong>to</strong> the patient’s religion. Today the role of a chaplain is often much broader.<strong>The</strong> chaplain can act as an extension of the patient’s personal <strong>and</strong> community support system,as well as be a source of spiritual support <strong>for</strong> the patient. When the chaplain has a regularpresence in a healthcare setting, the opportunity exists <strong>to</strong> provide support <strong>to</strong> the staff as well.William Hulme, a Christian minister <strong>and</strong> author, defines pas<strong>to</strong>ral care as the following:Pas<strong>to</strong>ral care is a supportive ministry <strong>to</strong> people <strong>and</strong> those close <strong>to</strong> themwho are experiencing the familiar trials that characterize the world,such as illness, surgery, incapacitation, death <strong>and</strong> bereavement. 22It is the spiritual aspect of human nature that raises questions about ultimate meaning <strong>and</strong>purpose, questions <strong>for</strong> which medicine <strong>and</strong> science have no answers. <strong>The</strong>se issues require aunique language in which symbolism, s<strong>to</strong>ry, <strong>and</strong> ritual are often involved. Chaplains have expertisein this <strong>for</strong>m of communication <strong>and</strong> are often best able <strong>to</strong> answer such questions.Some of these questions <strong>and</strong> concerns might be stated in the language of faith or religion. Herethe patient might invoke God, <strong>and</strong> in this instance statements of faith would be used <strong>to</strong> deal withthe questions. At other times, questions dealing with the purpose of one’s life might be moreappropriately answered in existential terms. <strong>The</strong> chaplain can deal with these issues in terms ofhow the world works, spirituality, <strong>and</strong> what we consider the essence or meaning of life. 23U.S. Department of Health <strong>and</strong> Human Services • Health Resources <strong>and</strong> Services Administration • <strong>HIV</strong>/<strong>AIDS</strong> Bureau 293

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