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The report is available in English with a French summary - KCE

The report is available in English with a French summary - KCE

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<strong>KCE</strong> <strong>report</strong>s 57 Musculoskeletal & Neurological Rehabilitation 183<br />

Health Care D<strong>is</strong>trict of North-East Skane, Sweden for about 190 patients. Prostheses<br />

were delivered to 43% of all patients <strong>with</strong> primary amputations. <strong>The</strong>se patients spent a<br />

median of 13 days at the orthopaedic cl<strong>in</strong>ic. 55 days at the rehabilitation unit.<br />

A retrospective study 194 analysed medical and nurs<strong>in</strong>g records of 45 patients who had<br />

undergone LEA at Uddevalla General Hospital. Hospitalization, rehabilitation and<br />

nurs<strong>in</strong>g-related data related to subjects alive after 6 months were compared <strong>with</strong> data<br />

concern<strong>in</strong>g those deceased dur<strong>in</strong>g hospital stay and <strong>with</strong><strong>in</strong> 6 months after amputation.<br />

<strong>The</strong> aetiology of the diagnos<strong>is</strong> lead<strong>in</strong>g to the LEA was cardiovascular d<strong>is</strong>ease <strong>in</strong> the<br />

majority of cases. <strong>The</strong> most common amputation level was below the knee. <strong>The</strong><br />

patients surviv<strong>in</strong>g after 6 months had permanent problems <strong>in</strong> the area of nutrition,<br />

elim<strong>in</strong>ation, sk<strong>in</strong> ulceration, sleep, pa<strong>in</strong> and pa<strong>in</strong> alleviation. <strong>The</strong> patients who died<br />

dur<strong>in</strong>g the hospital stay had problems <strong>in</strong> all these areas.<br />

8.6.5 Example: stroke pp<br />

Although the organ<strong>is</strong>ation models can differ per county, rehabilitation of stroke patients<br />

<strong>is</strong> organ<strong>is</strong>ed accord<strong>in</strong>g to an overall general approach <strong>in</strong> Sweden <strong>The</strong> general approach<br />

follows the process outl<strong>in</strong>ed <strong>in</strong> the Evidence based national guidel<strong>in</strong>es for stroke care,<br />

<strong>is</strong>sued by the Swed<strong>is</strong>h Board of Health and Welfare. <strong>The</strong> board monitors the quality of<br />

care and whether the correct measures are taken to implement the guidel<strong>in</strong>es.<br />

A vast majority of the stroke patients are d<strong>is</strong>charged home. Depend<strong>in</strong>g on their needs<br />

the rehabilitation process <strong>is</strong> cont<strong>in</strong>ued <strong>in</strong> ambulatory form at hospitals <strong>in</strong> case of<br />

comprehensive needs. If the patient <strong>is</strong> referred to a nurs<strong>in</strong>g home, the rehabilitation <strong>is</strong><br />

cont<strong>in</strong>ued at a low level by the paramedical staff attached to that facility. For those<br />

patients directly return<strong>in</strong>g home from a stroke unit, and need<strong>in</strong>g further rehabilitation,<br />

the health services of the municipalities are tak<strong>in</strong>g charge of the rehabilitation.<br />

A smaller group (around 9% of the total) of stroke patients <strong>is</strong> referred to post-acute<br />

<strong>in</strong>patient rehabilitation units <strong>with</strong><strong>in</strong> the hospitals. That can be general mixed<br />

neurological rehabilitation units (serv<strong>in</strong>g both TBI (about 25%) and stroke (about 60%))<br />

or general geriatric rehabilitation units.<br />

<strong>The</strong> quality approach <strong>in</strong> stroke rehabilitation <strong>is</strong> supported by a tradition of stroke<br />

reg<strong>is</strong>tration qq .<strong>The</strong> steer<strong>in</strong>g committee for “Riks-Stroke”, frames and outl<strong>in</strong>es quality<br />

<strong>in</strong>dicators reflect<strong>in</strong>g structure, process and outcome. All hospitals <strong>in</strong> Sweden admitt<strong>in</strong>g<br />

patients <strong>with</strong> acute stroke (85) participate s<strong>in</strong>ce 1998. Annually, each hospital receives a<br />

written <strong>report</strong> <strong>in</strong> which the local results are compared <strong>with</strong> the national data and <strong>with</strong><br />

comments and suggestions on improvements for the care. Data collection <strong>in</strong>cludes<br />

<strong>in</strong>formation on the patient's gender, age, h<strong>is</strong>tory of previous stroke, life situation prior<br />

to the current stroke and level of mobility and need of ass<strong>is</strong>tance <strong>in</strong> three ADL<br />

functions, namely dress<strong>in</strong>g, bath<strong>in</strong>g, and go<strong>in</strong>g to the toilet. Items related to acute care<br />

<strong>in</strong>clude, the time from the onset of symptoms to adm<strong>is</strong>sion to hospital, type of<br />

department to which the patient <strong>is</strong> admitted (medical, neurological or geriatric),<br />

whether or not the unit has organized stroke care (stroke unit), the patient's level of<br />

consciousness on adm<strong>is</strong>sion, whether or not a CT-scan was done, and, <strong>in</strong> patients who<br />

died, whether or not an autopsy was done. In addition, drug treatment dur<strong>in</strong>g the acute<br />

phase has been added s<strong>in</strong>ce 1998. Items reg<strong>is</strong>tered at d<strong>is</strong>charge <strong>in</strong>cluded: the duration of<br />

the acute adm<strong>is</strong>sion to hospital; diagnos<strong>is</strong> of the stroke subtype, the patient's status at<br />

d<strong>is</strong>charge (alive or dead), details of further management (at home or <strong>in</strong> an <strong>in</strong>stitution)<br />

and whether or not they required further care <strong>in</strong> an <strong>in</strong>stitution. A 3-month follow-up of<br />

the patients <strong>is</strong> <strong>in</strong>cluded 195 .<br />

Results from Riks-Stroke show that women, <strong>in</strong> compar<strong>is</strong>on <strong>with</strong> men, are more often<br />

liv<strong>in</strong>g <strong>in</strong> <strong>in</strong>stitutions three months after stroke. Women also less often receive<br />

196 , 197<br />

secondary stroke prevention.<br />

pp the <strong>in</strong>formation <strong>is</strong> based on a personal communication of Prof. Kathar<strong>in</strong>a Stibrant Sunnerhagen, Insitute of<br />

Neuroscience and Physiology - Rehabilitation Medic<strong>in</strong>e <strong>The</strong> Sahlgrenska Academy Göteborg University,<br />

SWEDEN<br />

qq www.riks-stroke.org

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