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Health Information Management: Integrating Information Technology ...

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THE CONTEXTUAL NATURE OF INFORMATION 63<br />

KEY TERMS<br />

■<br />

■<br />

■<br />

Contextual nature of health care information<br />

Primary and secondary purposes of data<br />

Accumulation of data<br />

INTRODUCTION<br />

Successful design, implementation and utilization of information systems in<br />

health care starts with a thorough understanding of the practices in which the<br />

systems are planned to function. In the previous chapter, we discussed the nature<br />

of health care work and the role of paper-based and electronic information<br />

systems in that work. In this chapter, we will discuss the nature of health care<br />

information, to illuminate problems and potentials in the design and utilization of<br />

PCISs. In government reports on electronic patient records, and in much of the<br />

medical informatics literature, the PCIS is often seen to afford the utilization of<br />

data gathered in the care process for secondary purposes: administration,<br />

financial management, research and so forth. Since the information gathered by<br />

the nurses and doctors that are managing the patient’s trajectory would no longer<br />

be ‘imprisoned’ in the immutable paper pages of the traditional record, many<br />

additional users could draw upon this information. The Council on Scientific<br />

Affairs of the American Medical Association, for example, states that ‘users [of<br />

the record] can be grouped into seven categories: providers, patients, educators,<br />

researchers, payers, managers and reviewers, and licensing and accrediting<br />

agencies and professional associations’ (1993). All such users desire more<br />

detailed, more timely and more comprehensive information about the inner<br />

workings of health care—and all have high expectations about what the EPR could<br />

bring them.<br />

The secondary utilization of information has achieved much attention since it<br />

touches upon the privacy of patients and the accountability of health care<br />

professionals. The first point will not be discussed here; we will come back to<br />

this issue of accountability in Chapter 5. Much less attention has been paid to<br />

another issue: is the secondary utilization of health care data possible, and what<br />

does it take to make it possible? In the views of much of the literature and<br />

reports on health care information systems, this secondary utilization becomes<br />

feasible as soon as the information technology (IT) connections are in place: it is<br />

simply a matter of selecting which information to transport to where. In such a<br />

view, medical information is conceptualized as the ‘givens’ about a patient that are<br />

‘collected’ and then ‘stored’ in the record. Similar to much discussion about<br />

‘information super-highways’ in general, ‘information’ is depicted as a<br />

commodity: a substance that is present in the world, that is transferable, and<br />

independent of its vehicle. It consists of autonomous, atom-like building blocks,<br />

which can be stored in a neutral medium. In this chapter, we will argue that this<br />

‘commodity’ view of medical information is fundamentally mistaken. Rather,

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