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Optimalisatie van de werkingsprocessen van het Bijzonder ... - KCE

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<strong>KCE</strong> Reports 133 Special Solidarity Fund 153<br />

• Patients living close to the Belgian bor<strong>de</strong>r, have the possibility to get<br />

medical treatment and medication in the neighbour country and can as<br />

such have cost of treatments or medication reimbursed that is not<br />

reimbursed in Belgium.<br />

The main reasons why the SSF doesn’t reach her objectives mentioned were:<br />

• The unfamiliarity with the SSF, as well within the group of medical doctors<br />

as in the group of social workers.<br />

• The long duration time before a final <strong>de</strong>cision is taken for some cases.<br />

• Lack of knowledge concerning the exact <strong>de</strong>finition of the SSF criteria and<br />

how these are interpreted in practice.<br />

• The administrative focus of the SSF instead of a medical viewpoint.<br />

• The fact drugs and medical <strong>de</strong>vices are kept within the SSF<br />

reimbursement system for too long (several years) instead of transferring<br />

them to the regular health insurance system.<br />

• The highly <strong>de</strong>fined and very limited field of action of the SSF.<br />

9.10.5 Alternatives for the SSF<br />

On the question “What other options do you see to respond to this type of need?” the<br />

following answers were provi<strong>de</strong>d:<br />

• The cancer fund (oncology focus): reimbursement of limited amounts<br />

• Public centres for social welfare (OCMW/CPAS): focuses on persons with<br />

a particular social profile<br />

• Private health insurances<br />

• The social funds of the sickness funds<br />

• Studies by pharmaceutical firms<br />

• The fund for occupational diseases<br />

• Organisation of charity event<br />

• Parents associations, grants, charity institutions, non profit initiatives, …<br />

• Caritas funds<br />

• Support/social funds of the hospital<br />

• MAB<br />

All respon<strong>de</strong>nts indicated that none of the channels mentioned are a valid alternative to<br />

the SSF. These channels are “emergency solutions”, no structural solutions responding<br />

to a need. The reimbursement of exceptional medical costs is seen as a responsibility to<br />

be covered by the health insurance system and can not rely on charity initiatives. The<br />

SSF is actually the only institution responding to the needs of patients who are<br />

confronted with high medical costs of necessary medical treatments, not reimbursed<br />

within the regular health insurance system.<br />

9.10.6 The intervention domains of the SSF<br />

9.10.6.1 Enlargement of the SSF intervention domains<br />

On the question “Which other elements should to your opinion be covered by the<br />

SSF”, respon<strong>de</strong>nts reported the following recommendations:<br />

• The criterion on “experimental phase” needs to be wi<strong>de</strong>ned.<br />

• The criterion “rare disease and rare indication” limits the action field of<br />

the SSF. High medical expenses due to an exceptional medical treatment<br />

that is judged as appropriate by the treating medical doctor should be<br />

reimbursed regardless of the fact the disease or the indication is rare.<br />

• The criterion on “vital function” is very restrictive. Hair transplantation<br />

for children is not a treatment of life-threatening nature but does offer a<br />

solution to a serious psychological/emotional problem.

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