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Optimalisatie van de werkingsprocessen van het Bijzonder ... - KCE

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<strong>KCE</strong> Reports 133 Special Solidarity Fund 175<br />

SSF, as well within the group of medical doctors as in the group of social<br />

workers.<br />

• The approach by the social services of the local sickness funds of SSF<br />

applications is not uniform and not transparent. The attention given to an<br />

application differs between the sickness funds and is often <strong>de</strong>termined by<br />

the quality of the individual contact of the patient and his interaction with<br />

the social worker from the local sickness fund.<br />

• Differences in treatment of SSF applications by the medical advisors of the<br />

local sickness funds creating unequal treatment of patients. The level of<br />

<strong>de</strong>tailed knowledge at local sickness fund level on the SSF procedures<br />

differs substantially leading to unequal results.<br />

• The approach by the SSF is very administrative oriented. The medical<br />

situation of the patient is rarely taken into account. The SSF <strong>de</strong>cisions<br />

focus on the administrative elements of an application.<br />

• The SFF does not start from an acceptance of the professional judgment<br />

of the treating medical doctor nor his expertise. The treating physician<br />

has too limited impact on the <strong>de</strong>cision-making process of the SSF. He is<br />

not seen as an objective partner that proposes the most a<strong>de</strong>quate<br />

treatment for his patient.<br />

• The grounds, on which <strong>de</strong>cisions for partial reimbursement are taken, are<br />

not known and not clear to the treating medical doctor or the patients.<br />

• Extensive motivation of <strong>de</strong>cisions is not available; there is no canvas on all<br />

<strong>de</strong>cisions taken by the SSF.<br />

• The fact a treatment has to be scientifically proven (have a scientific value<br />

and generally accepted as effective) limits the action field of the SSF. In<br />

some cases evi<strong>de</strong>nce based medicine is not possible since no scientific<br />

studies are or can be performed due to the rareness of the disease or the<br />

indication.<br />

9.12.5 Alternatives for the SSF<br />

In fact medical doctors interviewed see no real existing alternative to the SSF. However<br />

the functioning of the actual SSF is very much criticized.<br />

In general nearly all respon<strong>de</strong>nts suggest a maximal integration of actual SSF<br />

reimbursement within the regular insurance system. A supplementary system as the SSF<br />

should be restrained to the ultimate minimum. Such complementary system is seen as<br />

necessary to cope with extreme unique medical situations.<br />

Other options to respond to the needs that ‘should’ be met by the SSF, do not exist at<br />

this time.<br />

Next to the SSF, different additional systems are mentioned. These are used to<br />

complement SSF reimbursement or, if no SSF reimbursement was granted to get at least<br />

maximal alternative financial support for the patient.<br />

• Public centers for social welfare: only for patients without a minimum<br />

level of income;<br />

• Private health insurances;<br />

• Studies by pharmaceutical firms;<br />

• Free samples provi<strong>de</strong>d by the pharmaceutical firms;<br />

• Charitable organisations;<br />

• The hospital (not charging the patient);<br />

• Compassionate use of drugs;<br />

• The cancer fund (only for small expenses).<br />

All respon<strong>de</strong>nts indicated that none of these channels are a really valid and sustainable<br />

alternative to the SSF.

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